Injections instead of low iodine diet?

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Injections instead of low iodine diet?

by Learn_Something_New_Every_Day on Wed Jan 10, 2007 12:00 AM

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Hey there - getting ready for my second RAI round and just talked to someone (my dog's groomer).  She told me about her last RAI recently how she was able to have two injections right before the RAI instead of going off the medicine and waiting for your levels to rise.  The injections do something about making your body think it is hypothyroid.   My oncologist has asked my nuclear medicine dr. to ask my insurance to pay.  I am told the injections are at least a couple thousand a piece.  This is the only bright light I am seeing right now.  Didn't like the first round and not looking forward to the second except for these injections.  Has anyone else gone through this, and if so, do you have any comments or advise?

thanks

Julie

RE: Injections instead of low iodine diet?

by Ldsc61 on Thu Jan 11, 2007 12:00 AM

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Hi!  I just had two Thyrogen injections this week as part of my final testing (9 years out).  I've never had a problem with my insurance covering it but I am sure it needs pre-approval.  This is the second time I had the shots.  The first time I don't remember any side effects but this last time I ended up with my ears ringing, a sore throat, racing feelings, and a mild headache.  All-in-all it is 1000 times better than going off the meds.  My emotional state took a long time to get rebalanced after d/c the medications.  The research I've read says that the shots provide more false positives for the antibodies than the medication route.

Good luck and I hope this helped a little.

RE: Injections instead of low iodine diet?

by Char02032 on Thu Jan 11, 2007 12:00 AM

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My endo was not a fan of Thyrogen injections.  He said they were a little less effective in getting the job done compared to going hypo.  That was enough for me because I wanted to have the best chance of a cure the first time around.  The hypo suffering was temporary and worth it to me.

RE: Injections instead of low iodine diet?

by Pay123 on Mon Jan 22, 2007 12:00 AM

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On 1/10/2007 Learn Something New Every wrote:

Hey there - getting ready for my second RAI round and just talked to someone (my dog's groomer).  She told me about her last RAI recently how she was able to have two injections right before the RAI instead of going off the medicine and waiting for your levels to rise.  The injections do something about making your body think it is hypothyroid.   My oncologist has asked my nuclear medicine dr. to ask my insurance to pay.  I am told the injections are at least a couple thousand a piece.  This is the only bright light I am seeing right now.  Didn't like the first round and not looking forward to the second except for these injections.  Has anyone else gone through this, and if so, do you have any comments or advise?

thanks

Julie


The injections are not "instead of the low iodine diet."  You still have to go on the low iodine diet in preparation for the radioactive iodine; but you don't have to go off your thyroid medication.  I have taken the treatment 3 years in a row, and it is so much better.  You take a "thyrogen" shot two days in a row; the third day, you get the radioactive iodine, and the fifth day you take the body scan.  I did not have to go off my thyroid medication; and I had no side effects from the thyrogen shot.  It is much, much better than going through the hypothyroid state from being off the meds.  I had no problem with the insurance company.  Check out the www.thyrogen.com website. 

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