One patient with glioblastoma still alive nine years later
by Sad_Niece on Fri Jan 12, 2007 12:00 AM
Hello. I'm new to this board and am pleading for your help. We just found out that my uncle has stage 3A stomach cancer. They were supposed to surgically remove the tumor this past Wednesday but when they opened him up, they found out that the cancer has spread to his stomach lining. They ended up closing him up again and not removing anything. He's still recovering from his surgery. We're just so heartbroken that the surgery wasn't successful. All tests showed that the cancer didn't spread much but I guess when they opened him up, they decided that it was inoperable. We don't know what options he has available now since the doctors are waiting until he recovers from the surgery.
Please let me know your stories (good or bad) about inoperable stomach cancer. Is there any hope? What can I expect?
Thank you very much.
by Daddyslittledoctor on Fri Jan 12, 2007 12:00 AM
I am so sorry to hear about your uncle. What frustrates me is the countless stories I have heard about patients being on the operating table to remove a tumor only to wake up and have the doctor tell them that they were not even touched! It's like, go in, just take something out, anything! Bring me back a souvenir! At least your uncle is stage 3 and GOD willingly if they start chemo soon they can see enough improvement to finally go in and actually "take something out." My dad is at stage 4 and was deemed inoperable within the first two minutes of meeting our doctor. I know it's frustrating but hang in there. GOD bless.
by Peggypan1961 on Tue Jan 16, 2007 12:00 AM
by Leon_jr on Tue Jan 16, 2007 12:00 AM
by Beatcancer on Wed Jan 17, 2007 12:00 AM
RE: Stage 3A inoperable stomach cancer.
This sounds all too familiar. My husband was diagnosed with Stage 3A inoperable stomach cancer in May of 2005. He also had surgery and they were unable to do anything. He was diagnosed with linitis plastica. He had six months of chemotherapy and lived until June of 2006. The chemo gave us additional time. We hoped he would be able to start a clinical trial drug but his decreased kidney function prevented that. Most of the literature we read did not give much hope that the clinical trial would extend his life but a few months. Stomach cancer is a hard cancer to treat unless diagnosed early. Unfortunately, most stomach cancers aren't diagnosed early. I wish you the best.
by Dawsa on Wed Jan 17, 2007 12:00 AM
Hi there, I was diagnosed with Progressed stage 3 stomach cancer October of 05. I was able to get in at md anderson in houston very quikly. My oncologist is Dr Ajani. He got me right in a clinical trial. The trial drug was, Oxaliplatin. I went through this for about four months with 5 weeks of radiation mixed in. It was successfully in getting rid of the cancer in my stomach!
I went in for surgery to remove my stomach a couple of months later and my surgeon happened to find a tiny nodule on my small intestine. He then sewed me back up and considered me inoperable as well. A month later Dr Ajani put me on some different chemo's: xeloda(pill form of 5-fu), taxotere, and an anti-angeogenic called Avastin. After six months of this, they are no longer seeing any cancer cell activity anywhere! I've also been doing other things as well as my treatment.
There is hope! He must not give up! Be very pro-active with this! Advocating for himself is huge! Please feel free to contact me for any needed info about this. Josh D. email:
by Jena on Mon Jan 29, 2007 12:00 AM
by Sad_Niece on Mon Jan 29, 2007 12:00 AM
It turns out that my uncle has very advanced cancer and it has spread so much that they're telling us he has only 3 months left. He's on palliative radiation and he's too weak to go through chemo. I don't know what to do. Please help. Should I take him to MD Anderson? Is it too l late to do anything? Please let me know if there's anything I should be doing to save his life. Thank you.
by Elenak on Thu Feb 08, 2007 12:00 AM
Dear Sad Niece,
Please check our this web site www.oasisofhope.com
as well as www.issels.com
They're two very potent immunotherapy clinics in Mexico, on the border with USA, San Diego. They co-exist in the same building and share a very similar approach to cancer treatment. Many patients have arrived here "in the last" months or evern weeks of their lives and survived. DON'T GIVE UP!!!!!!!!
by Sad_Niece on Mon Mar 19, 2007 12:00 AM
My uncle is still alive and under palliative chemo. We're desperate to consider other options such as alternative cancer treatments once the chemo sessions are over. Has anyone heard of Dr. Jim Chan, who's practicing in Richmond/Vancouver, British Columbia? I'm worried about recommending alternative treatment to my uncle since I can't find too much research on it and I could never forgive myself if I recommended something and he gets worse from it.
If anyone can write on their experience with Dr. Jim Chan or on alternative treatment, it would be much appreciated.
Thank you and take care.
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