One patient with glioblastoma still alive nine years later
by Justjordn on Sat Jan 20, 2007 12:00 AM
My father just found out the other day that he has colon cancer that has spread to the liver. The day before we found out we had to bring him to the hospital because he was hallucinating so bad and he eventually left the hospital the next morning at 6am because he thought he was there for 5 days and hadn't seen my mother and I and was worried about us. I was wondering if anyone can tell me if the delusions and hallucinations can be coming from the cancer. The doctors said they don't know what the problem is and they have even done a brain scan that came back negative. If anyone could help me I would appreicate it.
by Shawnsmom on Mon Jan 22, 2007 12:00 AM
by Greatful on Mon Jan 22, 2007 12:00 AM
Shawn's mom gave some good advice about the meds and about having his liver function checked. The liver can cause an amonia build up if it is not functioning properly. Have you been in contact with a surgeon? Talk to your dad's primary care doctor about also refering you to a liver specialist.
I just want to say not to give up hope. My husband was diagnoised with cc/mets to the liver 7/04. He had a colon resection a week after diagnosis, started chemo 6 weeks later, had a liver resection, more chemo, another liver resection 3/06 and a hepatic artery infusion pump implanted, more chemo. In November he had a ct scan that show no evidence of disease. He is having a ct today and we will get the results of that on the 29th.
Please let us know how things go with you dad.
by Justjordn on Mon Jan 22, 2007 12:00 AM
by Shawnsmom on Tue Jan 23, 2007 12:00 AM
by Greatful on Wed Jan 24, 2007 12:00 AM
I am so sorry that your dad is so sick. I agree with Shawn's mom, now is the time to start demanding some answers and getting some more doctors involved. Believe me, I know how hard it is to question a doctor when they don't want to be questioned. I was brought up to believe that doctor's knew everything. When dh got sick I was in a state of shock and just blindly went along with what the doctors were saying. I got over that quickly when I decided that he wasn't getting the best care possible.
Tell the doctor that you want a second opinion, an oncologist and a liver specialist. If he won't do that, then get all of your dad's records including blood work and take them to some one else. Ask this doctor what your dad's liver enzymes look like. Ask him if the numbers are high or if he has a buildup of ammonia. Ammonia will cause these symptoms. Has he had a ct or pet scan? Insist on them if he hasn't. Ask him how many tumors your dad has in his liver. There are many treatments that they can do on the liver successfully. Find out if the cancer has spread any where else.
The doctor can't tell you that you dad will have only 3-6 months with surgery because he doesn't know how your dad will respond to the chemo. The doctor told us that dh would have maybe a year with surgery and chemo and he is going on 3 years and the scan in November showed no evidence of disease. Even tho chemo is definately not easy, they do have a lot of drugs that will combat the side effects.
Please don't give up. If it turns out that nothing can be done at least you have exhausted all possibilities.
I hope some of this helps. I really do know how you feel because I felt the same way when my husband was diagnoised. It is the most helpless feeling in the world. I will say extra big prayers that something can be done for your dad.
by Justjordn on Sat Jan 27, 2007 12:00 AM
I just wanted to thank you for your messages, sorry it took so long for me to reply. They started to give my father vitamins and stuff Monday and Tuesday when we came in he looked wonderful, his delusions and hallucinations have diminished almost to having none. Yesterday they decided to do surgery on the colon, which was a success they resected 16 inches of his colon and was able to reattach them leaving him without needed a bag. They want him to go to UPMC to Dr. Geller to have surgery on the liver in about 3-6 months. Hopefully we will get good news there too. I hope your loved ones are doing ok.Keep me updated and I will do the same. Have either of you heard about De. Geller? I heard a little about him through this site and it seems to be good. Well thanks again and I will talk to you soon. And thank you both for your prayers and know that I am saying prayers for you and your loved ones.
by Shawnsmom on Tue Jan 30, 2007 12:00 AM
by Justjordn on Thu Feb 01, 2007 12:00 AM
I read on this site that he is an amazing doctor and I look forward to meeting him. I hope everything will be ok. He hard a hard time after having that surgery on his colon so I hope he doesn't have the same hard time in Pittsburgh. I hope everything is going ok for you and I will talk to ya soon.
by Jellybeans on Tue Feb 06, 2007 12:00 AM
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