Delusions and Hallucinations with colon/liver cancer

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Delusions and Hallucinations with colon/liver cancer

by Justjordn on Sat Jan 20, 2007 12:00 AM

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My father just found out the other day that he has colon cancer that has spread to the liver. The day before we found out we had to bring him to the hospital because he was hallucinating so bad and he eventually left the hospital the next morning at 6am because he thought he was there for 5 days and hadn't seen my mother and I and was worried about us. I was wondering if anyone can tell me if the delusions and hallucinations can be coming from the cancer. The doctors said they don't know what the problem is and they have even done a brain scan that came back negative. If anyone could help me I would appreicate it.

 

Thanks

Marie

RE: Delusions and Hallucinations with colon/liver cancer

by Shawnsmom on Mon Jan 22, 2007 12:00 AM

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Hi, I just came online and noticed your recent message.  I would be checking the liver functions.  My dad had liver problems and buildup of certain chemicals in the body can cause hallucinations and confusion.  Also, check to see if any medications that he is on causes confusion.  You can do this yourself.  My son was on a pain medication which made him paranoid and confused.  Once stopped, he went back to normal.  Not everyone listens to you so be an advocate for your Dad.  You don't say the age of your Dad but after checking all the above, then maybe you can consider disorientation from being in the hospital.  Many elders have this problem. Right now my son is fighting colon cancer with many mets to the liver and just underwent chemoembolization last Wednesday. He is 30 years old.  Just stay in touch with the people online and believe me you will learn alot and become informed of everything that is out there.  I know it is hard when you first hear everything; so take some time to settle in with the diagnosis and then get busy getting all of the information you can.  It will be a long road; but we are all here for you.  Thanks, Shawn's Mom

RE: Delusions and Hallucinations with colon/liver cancer

by Greatful on Mon Jan 22, 2007 12:00 AM

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Hi Marie,

Shawn's mom gave some good advice about the meds and about having his liver function checked. The liver can cause an amonia build up if it is not functioning properly. Have you been in contact with a surgeon? Talk to your dad's primary care doctor about also refering you to a liver specialist.

I just want to say not to give up hope. My husband was diagnoised with cc/mets to the liver 7/04. He had a colon resection a week after diagnosis, started chemo 6 weeks later, had a liver resection, more chemo, another liver resection 3/06 and a hepatic artery infusion pump implanted, more chemo. In November he had a ct scan that show no evidence of disease. He is having a ct today and we will get the results of that on the 29th.

Please let us know how things go with you dad.  

 

 

RE: Delusions and Hallucinations with colon/liver cancer

by Justjordn on Mon Jan 22, 2007 12:00 AM

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Thanks everyone for responding to my message. The doctors informed us that they have no idea why he is hallucinating and having delusions. It started last Monday morning, brought him to the hospital for it and later taht night we found out he had cancer. He has been in the hospital for 1 week today and it seems like he is getting worse. I feel like I can't even have a conversation with him because he has no idea what anyone is talking about. And all his does is see things (like the statue of Jesus moving). I don't know what else to do. They only give hom 3-6 months with surgery on his colon and chemo on his liver and the rest of the tumors in his colon. I am confused, scared and numb. I jsut want to thank you both for your messages and words of encouragment. I hope you everything is well with your families and yourselves.

RE: Delusions and Hallucinations with colon/liver cancer

by Shawnsmom on Tue Jan 23, 2007 12:00 AM

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Hi again, Sorry to hear about your Dad.  I find it hard to believe that they do not have any indication what is causing his confusion.  It is very hard to get information sometimes; but you need to keep pushing for answers.  I would ask for a team of Doctors, oncology, surgeon, liver specialist and colon specialist.  My mistake in the beginning was not to have a team assembled and we went to a small hospital for treatment. Something I have corrected since then.  It is very unsettling when you have everything being thrown at you at once especially a timeframe.  Sit down with these specialists and have a friend go with you who can take notes and not get emotional about the situation.  Write down your questions and make a list of all of your options for your Dad.  My thoughts and prayers go to you and your family.  Be strong.    Shawn's Mom

RE: Delusions and Hallucinations with colon/liver cancer

by Greatful on Wed Jan 24, 2007 12:00 AM

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Hi,

 I am so sorry that your dad is so sick. I agree with Shawn's mom, now is the time to start demanding some answers and getting some more doctors involved. Believe me, I know how hard it is to question a doctor when they don't want to be questioned. I was brought up to believe that doctor's knew everything. When dh got sick I was in a state of shock and just blindly went along with what the doctors were saying. I got over that quickly when I decided that he wasn't getting the best care possible.

Tell the doctor that you want a second opinion, an oncologist and a liver specialist. If he won't do that, then get all of your dad's records including blood work and take them to some one else. Ask this doctor what your dad's liver enzymes look like. Ask him if the numbers are high or if he has a buildup of ammonia. Ammonia will cause these symptoms. Has he had a ct or pet scan? Insist on them if he hasn't. Ask him how many tumors your dad has in his liver. There are many treatments that they can do on the liver successfully. Find out if the cancer has spread any where else.

The doctor can't tell you that you dad will have only 3-6 months with surgery because he doesn't know how your dad will respond to the chemo. The doctor told us that dh would have maybe a year with surgery and chemo and he is going on 3 years and the scan in November showed no evidence of disease.  Even tho chemo is definately not easy, they do have a lot of drugs that will combat the side effects.

Please don't give up. If it turns out that nothing can be done at least you have exhausted all possibilities.

I hope some of this helps. I really do know how you feel because I felt the same way when my husband was diagnoised. It is the most helpless feeling in the world. I will say extra big prayers that something can be done for your dad.

RE: Delusions and Hallucinations with colon/liver cancer

by Justjordn on Sat Jan 27, 2007 12:00 AM

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Hello guys

I just wanted to thank you for your messages, sorry it took so long for me to reply. They started to give my father vitamins and stuff Monday and Tuesday when we came in he looked wonderful, his delusions and hallucinations have diminished almost to having none. Yesterday they decided to do surgery on the colon, which was a success they resected 16 inches of his colon and was able to reattach them leaving him without needed a bag. They want him to go to UPMC to Dr. Geller to have surgery on the liver in about 3-6 months. Hopefully we will get good news there too. I hope your loved ones are doing ok.Keep me updated and I will do the same. Have either of you heard about De. Geller? I heard a little about him through this site and it seems to be good. Well thanks again and I will talk to you soon. And thank you both for your prayers and know that I am saying prayers for you and your loved ones.

Marie

RE: Delusions and Hallucinations with colon/liver cancer

by Shawnsmom on Tue Jan 30, 2007 12:00 AM

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Hi,  So glad to hear your news.  I can't believe that you are seeing Dr. Geller.  I e-mailed him a few months ago and my son and I were all set to go to Pittsburgh to have SIRT; but insurance would not cover the hospital or his staff.  He suggested that we meet with doctors at Lahey.  He even e-mailed asking them to help us out.  I have been in contact with him through Shawn's treatment.  He is a wonderful and caring person.  His staff is excellent.  You are so lucky to have him.  He is one of the only doctors in the country that does a double lobe resection of the liver.  So glad to hear that he is your doctor for your Dad.  He has been an instrumental part in my son's treatment which has given us more choices.  I'm so glad that your Dad is doing well.  It's a long road; but you have certainly found the right path.  Good Luck and say 'Hi" to Dr. Geller from Shawn's Mom in Boston! 

RE: Delusions and Hallucinations with colon/liver cancer

by Justjordn on Thu Feb 01, 2007 12:00 AM

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I read on this site that he is an amazing doctor and I look forward to meeting him. I hope everything will be ok. He hard a hard time after having that surgery on his colon so I hope he doesn't have the same hard time in Pittsburgh. I hope everything is going ok for you and I will talk to ya soon.

Marie

RE: Delusions and Hallucinations with colon/liver cancer

by Jellybeans on Tue Feb 06, 2007 12:00 AM

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Hello, I just had a liver resection 3 weeks ago and also halucinated. The cause was Xanex. It is a medicine for anxiety. I only use it 1-3 times a month but while in the hospital they gave it to me daily. Many halucinations later (like seeing everything as a negative photo, seeing a dog walk through my room, seeing smoke coming out of a vent in the hospital) and off the Xanex all is good and back to normal. My advice is check his medications. My prayers are with you. Linda
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