On 1/23/2007 Mad1i wrote:
My Mother was diagnosed 6 or so months ago with a brain tumor and was prescribed Timodar along with radiation. After 3 days of treatment we elected to discontinue due to the side effects. To make a long story short we have a three months supply of Timodar(100 mg, 60 in each bottle) in sealed bottles that my Dad refuses to throw out, which is what the doctors have told him to do. After I saw the retail price and him being a depression baby I can understand.The prescription was covered under their insurance and cost 35 bucks. Is there an organization that these can be donated to that could "give" this out to a needy patient? Seems a shame(more like insanity) to throw out $10k plus worth of possibly life saving medication. You wonder why health care is so expensive!(well maybe not) chris
Mad1i,
My name is Greg and I also had a 7 centimeter tumor removed from the left side of my brain. I am staying with family in Miami getting ready for Radiation and Chemotherepy. We have been looking for help to pay for Timodar. I have to come up with $2,900 just for the first 42 days. I have a website where you can read my story to get to know me. Hopefully I may be a worthy recipient of your mothers Timodar.
My website is www.carepages.com
You need to sign up for a free membership and then look up my name "Greg Llerena".
You can get a hold of me through my email
--- Message edited by CancerCompass staff: for personal protection, email address and phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- I do feel bad for your mom. I know that Duke Universities Brain Tumor Center has other options when Timodar doesn't work. They explained to me not to feel utterly defeated. The Timodar/Radiation combination is there bread and butter first play. When that doesn't work, they take out their "play book" and start to really work with you aggressively with the latest rising breakthroughs. Personally, I had a phenomenal experience with my surgery and now they are managing my Radiation/Chemo with at local Cancer center here.
Web site: www.cancer.duke.edu/btc
May God bless you and your family through all this,
Greg Llerena