My sister was diagnosed with myelofibrosis in December and she seems to be slipping as well. her blood counts are way down, she is black & blue all over, is tired all the time, has rashes all over her body and has lost a lot of weight. The doctor has treated her with procrit and iron, but nothing else yet,. we are frustrated watching her go down hill,
What meds is your husband taking. Does he live in NY? who is he seeing?
I look forward to hearing from you. Cheryl