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Needing Info

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Subject: needing info
Date: 02/04/2007
I'm waiting for MRI results and getting pretty antsy in the interim.  I had a bone tumor, recurrent, 7 years ago, resulting in amputation, a chondrosarcoma.  I have annual  CTs of my lungs, since a met, if it happened, would likely be there, according to my oncologist.  Last week the CT showed an increase in fatty liver (which I didn't know I had) and a "suspicious area" in the liver in 4b.  The mass was about 3 cm.              

I talked to my oncologist a couple of days later, and he tended to discount the importance, although he told me to have an MRI of the liver right away and to see a gut doctor (who saw me for about 2 minutes & took more blood).  The MRI was last week, and I still haven't heard about the results. I function better when I know what I'm dealing with, and this waiting is killing me.

I don't drink at all, have no hx of hep.  I gained about   80 lbs after the amputation, as a side effect of the medication I take reflex sympathetic dystrophy , a complication of the amputation.  I take an amazing amount of medicine for pain control.  Our family has an odd history of illness, including mastocytosis, neurofibromatosis, peptic ulcer, cirrosis (from alcoholism).

I haven't been feeling well for a long time.  This extra weight seems utterly resistant to my efforts to lose it, and I've  been extremely fatigued, with itchy skin, pins and needles feelings in my feet, and pretty pronounced swelling in my feet and hands. I've developed asthma,  osteoporosis, stage II kidney failure, and HTN all since the amputation.

Do you know anything about the rates of liver cancer, the odds of its occurance after a chondrosarcoma, and whether these problems are even consistent with it?  My friends tell me to call my oncologist right away to get these results, but I'm reluctant to bother him.   Seems a little silly, but  still.  I'm  kind of a mess just waiting.
Subject: RE: needing info
Date: 02/13/2007
BOTHER YOUR DOCTOR!!!!! Catching liver cancer early is SOOOOO crucial!!!!   I wish you well!
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