Stage 4 ovarian cancer - I would like advice - help - whatever

Hi Shel A,
Just checking in with you...did you get my overly long letter on the 6th in answer to yours on cancer compass? You included your email address so I sent it that way. Please let me know how you are. I have been worried when I have not heard back from you. Hugs and Prayers for you..., Love, Joan

Hi Joan and the rest of you!

Didn't you get my reply? I did write a long note back to you on the email you sent off this group. Hope you got it. I have not heard back from you since. I hope things are ok. Please let me know! I am concerned.

To let you know what is going on, I went to the hospital yesterday and they removed 4 liters of fluid off my abdomen. Dr. said it is making its own pockets and would have to poke me alot of times to try to get to all of them. They will just use whichever has the most fluid in it each time I go in to have it done. They figure it may be a monthly thing. I have lost 49 pounds since the end of December but at least I can finally keep most things down. The only thing I have a problem with is apples. I throw up every time I eat one. Not sure what the deal is with that and my Drs have never heard of that happening before. I have tried different kinds so it isn't that. I have been pretty sick and Dr. feels that since I have now quit chemo, things may progress faster. I am going to be tested in April to see if I qualify to be on this new study that Mayo is doing. It has something to do with Measles vaccine. Can fill you in more when I know more. We are leaving for MX on Tuesday. Will leave here Monday and spend the night in a motel in the cities so we can leave our car parked there. Will be back the following Tuesday night. Hoping things go well so I can have some fun!!! Am really looking forward to the warm weather!!! Keep me posted as to what is going on with you guys! Amy, what is the newest? Take care and think of you all often!!! Shel

i have been fight this divel for 6yrs now this yr seams to have been the hards for me because of the water build up in my stomach and around my lung the first time thay took about 15 pound for me it was 5 1/2 of the bottles i have it done 6 time now twices on my lung i realy dont like it to bee done from my lung because of the cought and lose my breath scare me it unpleasent any you go iam try to fine someone thats had this problems and if there is a fix if you like email me --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---
i locate in tx

how you are doning better and can enjoy christmas and the new year
hope 2006 help all thet fight cancer or any illness

GOD BLESS IS ALL

I had surgery for ovarian cancer 5/05/95 which was diagnosed early stage 1A. Had 4 round of chemo (carbo-taxol) and was in remission for almost 8 years. In Dec. 2002 I felt a hard mass near my neck (clavicular)which was found cancerous. Also CT scan showed enlarged lymph nodes near the aorta at my back, OCA 125 is around 20. Had 6 rounds of Carbo-taxol in early 2003 again which took care of the enlarged lymph nodes but hard lump at my neck did not go away. Had radiation in Nov-Dec. 2003 for my neck lump and lump disappeared. However, my OCA 125 stayed above 20 although my CT scan was fine in 2004. In Oct. 2005 my CT scan again showed enlarged lymph nodes, the same ones found in Dec. 2002. My OCA125 is about 21. My oncologist ordered 4 cycle treatment with carbo-gemcitabine, + epo (to build up my hematocrit) from Nov to Jan. 2006. My OCA was 11.5 last Jan. 2006 and my CT scan looked fine.I am now done with chemo but would like to know if there is anything out there, nutrition-wise that I can take to keep or maintain my present condition. The lymph nodes are still there but under control.
Flora