One patient with glioblastoma still alive nine years later
by Jillpls on Wed Feb 07, 2007 12:00 AM
I am not sure about the CEA test. I show 0.9 for my CEA. This hasn't changed since I had first been diagnosed with rectal cancer in August. I went through 6 weeks of chemo/radiation and the CEA was the same after. I did have surgery and am now on Folfox6 for 4-6 months. Is 0.9 high or low. It seems to be low but I'm confused. Does anyone understand the markers??? Thank you
by Cptmac on Wed Feb 07, 2007 12:00 AM
Your CEA is good. Anything below 3 is good. Your in the normal range. Some people who have colon cancer have up over 1,000 of a CEA.
by Msmittens on Wed Feb 07, 2007 12:00 AM
by Dealingwithit on Wed Feb 07, 2007 12:00 AM
by Actionman on Mon Feb 12, 2007 12:00 AM
Not all tumours give off CEA, so you may not have a high level. When I was diagnosed with stage IV rectal cancer a year ago, my CEA was over 2000. It is now below 60 following radiotherapy, chemo (FOLFOX4), radiofrequency ablation to liver. CEA is useful in following how you are responding to treatment or if you have recurrence. Another useful marker is CA19-9 for bowel cancers.
The reference ('normal') range is less than 3.
more info here...
by Jellybeans on Mon Feb 12, 2007 12:00 AM
by Anneisabelle on Tue Feb 13, 2007 12:00 AM
On 2/7/2007 Jillpls wrote:HI,I am not sure about the CEA test. I show 0.9 for my CEA. This hasn't changed since I had first been diagnosed with rectal cancer in August. I went through 6 weeks of chemo/radiation and the CEA was the same after. I did have surgery and am now on Folfox6 for 4-6 months. Is 0.9 high or low. It seems to be low but I'm confused. Does anyone understand the markers??? Thank you
I'm happy to share what I know of CEA counters from our three year experience.
C= carcenogenic E= embryonic A= antigens
We have been keeping an eye on the CEA tests along with CT scans for my husband's colon cancer for almost THREE years now. Here are the numbers for a normal CEA test. 0 -- 4.9 You are FINE girl!
My hubby's first CEA count was THIRTY SEVEN when colon cancer was first detected by the biopsy taken when he had a colonoscopy.After surgery (where they also found a TINY spot on the liver which was removed and biopsied and it came back as colon cancer) his CEA count went down to 4,7 and stayed there for about six months. After a CT scan the number shot up and a spot showed up on his lung and kept growing.They removed that and the CEA count dropped somewhat but not much. The follow up CT scans then showed a spot on his liver and chemo was ordered. He had four different types of chemo treatments during this time and the count kept going up. None of the chemo treatments reduced the new spot on the liver. Surgery for the liver was not an option. All further medical treatments (interventions) were halted last week.His CEA count last month was well over 400 and the spot had doulbled in size..I didn't ask what last week's CEA count was.
Good Luck Jil,
It looks as if you are one of the lucky ones who got it caught early.
by Dealingwithit on Tue Feb 13, 2007 12:00 AM
On 2/12/2007 Jellybeans wrote:I am sorry to hear that your husbands cancer is not responding to chemo. Has he tried Avastin at all? I had a very large dose of Avastin for a few months and it seemed to whip my cancer metastisis into shape. I weigh about 130 lbs and was given 30mg (6 times the normal dose). It does come with serious side effects at that dose but if nothing else is working it is worth a try. Peace and prayers for both of you. Linda
Yes, he was on Avastin biweekly with another chemo on the opposing week. His cancer still multiplied, but no where near like it spread when he was on Panitumumab (Vectibix). With Panitumumab, the lesions in his liver increased in number and size and he now has it in both lobes of his lungs, which were always clean. He was on Avastin two different times, but I don't know the dosage and don't remember what he took in combination with the Avastin. With Avastin the lesions grew in size and number in the liver, but a little slower than with the Panitumumab. I'll ask his doctor about the dosage, etc he was given, thank you. And thank you for your prayers.
by Jellybeans on Wed Feb 14, 2007 12:00 AM
You could also try this suggestion from the University of Michigan. They suggested that I go on this trial if the chemo I was on stopped working. It is Cetuximab (Erbitux), Irinotecan, and Mitomycin C. I again am sorry to hear what he has been using is not working. Prayers and hugs, Linda
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