One patient with glioblastoma still alive nine years later
by Leanne on Thu Feb 15, 2007 12:00 AM
by Bmxspeedqueen on Sun Feb 18, 2007 12:00 AM
On 2/15/2007 Leanne wrote:anyone here have pain in their tail bone who has colon cancer or any cancer in the abdomen, . I had a cat scan yesturday and dont have the results. I hope they find out what is wrong with me but i am praying there is nothing wrong. I am worried .......................
My hubby has that exactly. He has been diagnosed with Stage III Rectal Cancer and he is only 32. Not sure what else to say other than he has a tumor and the surrounding tissue is ulcerated. It is approx 1.5 centers or 1/2 inch inside so easy enough to touch it is so close. Hence all the pain. He can barely sit a lot of the time, Vicodin doesnt even help much. Since he has been diagnosed, he takes laxatives nightly which also helps the pain. Have you seen a Dr yet? I hope so, if not RUN to get a colonoscopy.
by Leanne on Mon Feb 19, 2007 12:00 AM
could you please give me more details. like how long he had the pain before he got it checked out. and did they only do one test and find it. and how do they treat it. and so on. i really want to know what he has been thru before the looked at by the doctor. i had problems all my life with my stool. plesae let me know more about his sistuation. thank you very much for your first message.
by Bmxspeedqueen on Mon Feb 19, 2007 12:00 AM
My husband had abdominal pain that lasted approx 4 days back in August. He went to the Dr and complained of the pain, bloody stool, and frequent bowel movements (8-10 a day) She did a blood test for anemia and that was it and the pain went away so he thought nothing of it. Around the 1st week of Jan he started to experiance lower back/tail bone pain. He waited it out and thought it would go away and when it didnt he made an appt to see the Dr. So it was about 3 weeks. He saw the Dr and she did a blood ocult test and a rectal exam. She diagnosed internal hemhroids and ran some blood work and scheduled a colonoscopy to make sure along with some pain meds. 2 days went by and the meds werent helping so my hubby went back in and got different meds and she asked about the colonoscopy and he said it wasnt until Feb 22nd. Not good enough she said and she personally called and had it moved. His colonoscopy was done Jan 26th (Friday) and they called on Tuesday at noon and said he had cancer and he had a CAT scan at 230 that afternoon and then an ultrasound and then we got the final diagnosis a week later. Stage 3 rectal cancer. So it was about 11 days from the original colonoscopy date. By the way, my hubbys blood work is still good, always has been. I have read many people have said the same thing. Please let me know if you have any more questions and please let me know what you find out.
by Ian_c on Tue Feb 20, 2007 12:00 AM
by Leanne on Tue Feb 20, 2007 12:00 AM
could you please explain more things to me. I am very new to any of this. I still dont know much yet. I dont knwo what is wrong with me. just have alot of pain in my tail bone and a lump in my left side. and having trouble with my right kidney. the doctor said the cat scan showed my abdomen and they seen some cystic masses on liver, kidney, overie (spelled wrong sorry) and they the cat scan said to do more tests on my pelvis. the doctor didnt order any test for my peliv orgianlly so i wonder if the radiologist seen something questionable. well the doctor said things looked good except cystic masses. but i am in alot of pain and so VERY tired all the time. To the point to were if my life didnt require me to be up up and wake i could sleep all day and all night. but i know i cant. I dont want to worry and let myself think i have something and find out i dont but in my heart of hearts i do feel like i have something wrong with me. My tail bone has been hurting alot for about 5 months or so, and I told the other doctor about it in november but then i went in january and you know doctors they dont take time to listen and i felt stupid saying all my problems so he just ordered the abdomen cat scan and i never got to tell him about my tail bone. but i was hoping it would show up. then i get the results and they said to do more test on the pelvis. so i wonder now what they might of saw. my doctor didnt even mention doing more test. but he didnt know i had the results myself for the hospital. so my husband called today and told them he wanted to know what test they were talking about having me do. and so i dont know what the doctor is thinking now. he is probably upset my husband called. I hate to make anyone upset at all with me. I really wish they could just tell me what is going on. I somenight cant hardly pee at all. and the lump in my side really scares me but the cat scan didnt say anything about it .. good or bad. so i wonder if they just over looked it.
please explain to me what is mets and also Do you have cancer then or just doing treatments for like pain or something.
I will keep you in my prayers........
thank you sooo much for the message i need to hear from people so i know i am not crazy. I have 5 kids and dont want to have to make them live with out their mommy.
by Ian_c on Tue Mar 06, 2007 12:00 AM
Leanne, Take the time to make another appointment with your doctor for the tailbone. I went for an X-ray and MRI which didn't show anything. A CAT finally showed the lytic lesion on my right tailbone. I'm on morphine for the pain which is now unnoticeable. It sounds like there is more going on with you. Mets is called metastasis - the cancer spread to another organ or area.I am 45 yr old male - I started out with rectal cancer Jan 06 which spred to my liver, spleen and tailbone. I am inoperable for the colon cancer and have been on chemo for one year. Still working and doing what I did before- just a little more slowly. I am on FOLFOX chemo with Avastin and am hoping it will shrink or delay progression of the colon tumor. I have had radiation for the tailbone - didn't really work. I am looking into Erbitux treatments as well. Get back to your doctor for more tests. Write down what you want to talk to him about so you don't forget and don't let him/her give you the bums rush out of the office until you are satisfied with the answers to your questions. I will monitor this site for your updates. Ian C
by Leanne on Wed Mar 07, 2007 12:00 AM
thank you so much for your responce . I am still having alot of tail bone pain but it has been there for a while now. over the last few months it has gotton worse. i was wondering more about your problem. did your tail bone hurt from more the inside. and your colon cancer. do you have a lump that you can feel thru the outside. and is it round or like long . sorta like you can feel this long hard worm in your stomach. Mine spot is about many inches long. and doesnt hurt persay . just feels like i have a ball in there. and what did your doctors say when they couldnt find anything on the first test. i feel like my doctor is mad at me now. My husband called him and asked him to send me to a specialist and he said he needed to see me again. and my husband said why. because nothing has changed and we dont have insurriance and dont want to pay another office call. but he said. i need to see her again. becuase i dont know where to send her.So right now i am just in depression mode and feel like this is never going to be found out what is wrong. and we cant afford to find out what is wrong. So i am just hoping my body is ok and that we can hold out till my husband gets a better job and gets insurriance. I am sure any insurriance will say they wont cover anything i do because it is something i already had before they took us on. i am so depressed. My husband wants me to get in and i am just thinking maybe it will go away. i have noticed the lump since this past summer (at the first of it) and my tail bone just keeps getting worse. It is bearable when i dont sit to long. but when i sit for more then a say half hour it just hurts so bad i want to screem. I have a hard time laying in bed even becaue my own other half of my butt resting on it hurts it. and i am not a large women. just any pressure hurts it. ok well enough on me. I really could use more details on your condition and how you first noticed it and how long before the doctors told you what was wrong. how bad was and is your pain. and so on. how did it start and what does the colon problems feel like. how long you have trouble with your colon.. any trouble with your stools in the past. please just let me know more details. I just feel like if i knew more from others. then i will think i am not crazy and need to go in again or not. i am really hoping to just be ok and that i can hold off till he gets insurriance on me again.
thanks for your time..
by ladybuck on Thu Sep 20, 2007 12:00 AM
by cowgirlsmom on Mon Jan 07, 2008 12:00 AM
Did you ever find out what caused your tailbone pain. I have been suffering since Sept 07,,,,,I can hardly walk and it feels like an ice pick is stuck in my tailbone. I have had an MRI, CT and bone scan. THe doctors say nothing is there. I had a laproscopy of to remove a cyst on ovary but that was not the cause of my tailbone pain. The doctors just dismiss me because they don't find anything. I am going nuts with this pain and need to have my life back but the doctors don't seem to want to help. I have 2 little kids and need help so I can take care of them. Any ideas out there for tailbone pain?
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.