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Very Worried - Need Help

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Caregiver
Caregiver
Linda & Todd
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Subject: Very Worried - Need Help
Date: 02/15/2007

My husband is having a very difficult time with this whole procedure. The neasea is getting to him. For example today he had 1 slice of toast and 2 containers of Boost. He paces the floor and feels very miserable. I am going to seek help as his caretaker from another part of this site, but what can I do for him? My concern is his nutrition and his mental state. He has just started the treatment - 2 weeks rad and 1 chemo. I tried to get him to go on this site to vent with other survivors but he says he can not focus on anyting right now. Maybe someone can give me some ideas?

Subject: RE: Very Worried - Need Help
Date: 02/15/2007

Linda - what medications is he on? When my husband was on decadron, he would pace, and be very anxious. One time at 2am I found him standing at the kitchen counter doing math problems. It was scary. He was just measuring things (he is a floor installer by trade) and figuring how much tile it would take to cover the kitchen walls. Not that he would do that, but his mind would not stop. He does not take that anymore, but this is what he went through on thois medicine. ??? Not sure if this helped..

Caregiver
Caregiver
Linda & Todd
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Subject: RE: Very Worried - Need Help
Date: 02/18/2007
Todd also experienced the same feeling - pacing with no ability to concentrate on anything. He also was taking the decrodon. He stopped but still is very nervous and edgy and has not been out of bed since chemo 5 days ago. The Doctor's chnaged his medicine to Zofran and Reglan for neusea but it has not helped. Also gave hime Ativan to help sleep. Still trying to find a medicine that will at least help him feel a little better.
Patient
Patient
Kloeknstien
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Subject: RE: Very Worried - Need Help
Date: 02/20/2007
hello my name is chris im not to good at typing so bare with me i know how your husband feels ive been thru the chemo and radiation a year again this thursday the 22 im sorry to say i have it again a year latter here is some of what i went threw the tell you it will all be ok    to be honest  and please do not take this wrong but i was misserable  the first few weeks  and the last 2 weeks of radiation there is no easy way to do it but im thinking your body gets use to it are you do because things start to get better for me and will for him               i never felt like eating because nothing taste good boost taste better then alot of other drinks i actually gained wight drinking them and milk shakes with carnation instant breakfast drinks  i dont want to keep you to long but if you reply back to me ask me any question iknow a few answers i go for my 6 operation march 1 2007

for my second time of having cancer in a year  also dont let this scare you away prayer can help to the fullest and i will pray for your husband and you as well to cope with the trials you are having  

Subject: RE: Very Worried - Need Help
Date: 02/20/2007
You might try Marinol. This is a synthetic type a THC. It is the same chemical that is the active in greadient in Pot. If you can find some Pot it might worek better than the Marinol.
Subject: RE: Very Worried - Need Help
Date: 02/27/2007
I am in much the same situation as you it seems.  My husband had his first chemo treatment a week ago today and he just gets worse every day.  He has cancer at the base of his tongue, tonsil and lymph nodes in his neck.  His treatment plan is 9 weeks of chemo and then radiation for 40 days. This was supposed to be the week he started to feel "better" after the chemo but he has developed ulcers in his mouth and can't eat, drink or talk.  He has turned in to a different person in one week.  I am frightened for him. I don't know what to do to help him. 
Subject: RE: Very Worried - Need Help
Date: 02/28/2007

I had very serious problems with nausea for 4 months. None of the prescribed meds worked for me. The only things that relieved the misery were dried ginger candy (available at Asian markets and health food stores), orange peels or orange essential oils (you smell the orange peels or oils and it helps alot), or pot. I don't suggest anybody use pot but I did and the results were immediate and dramatic. I was told about the ginger candy from an Asian doctor in the hospital and I saw a thing on TV (Myth Busters) where they found that it was the only homeopathic way to stop motion sickness. A good friend on this board gave me the tip about sniffing the orange peels ina plastic bag. I'm not going to tell you where I got the pot. These methods worked much better than Zofran or any of the anitemetics I was prescribed.

Subject: RE: Very Worried - Need Help
Date: 03/01/2007

I just got through the treatment. It is not a walk in the park. I wrote a website about my experience.

www.lishosting.com/allen

 hang in there and drink water, take vitamins, keep hope alive. He will get through this.

 

 

 

Subject: RE: Very Worried - Need Help
Date: 04/23/2008

Your point is well taken.

It appears that THC, etc may be an answer. Why are the drug companies not looking at it? After all, it is controlled and they can still make big bucks on it. Maybe not as much as the $8000 a dose chemo, but still profitable.

I hope someday, we will open our eyes and find cures that are staring us in the face and do it with real ethics and not so profit motivated. The drug companies have no ethics at all.

my new site is www.cancerlifestories.com. if you have a

story, please post it for everyone to read.

take care and God bless you all.

Allen

 

 

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