One patient with glioblastoma still alive nine years later
by Siluncd on Thu Feb 15, 2007 12:00 AM
ok, im a 28 yr old male. For a month now ive had pain in my lymphnode, at least i think its my lymphnode. Im talkin about the lumps right below your ears on both sides. Well the pain is coming from from the one on the left. The pain comes and goes most of the day, some days its not that bad and others it hurts more often. Also having pains in my lower neck, in the left side of temple that go to the top of the head, pain in the arm and center of chest barely on the left side, and sometimes in my jaw right in front of my ear, and also ear pains occassionally and ringing. But mostly right below my ear I sometimes feel kind of like a pressure in that area of my neck and temple but not that severe. And on that node at the bottom there is like a little mass, where i think the pain is coming from. it seems it might be getting bigger but also just be my mind playing tricks on me. My face also tingles sometimes like it is trying to go numb, its on the same side as well. In the past 3 days ive noticed, twice, a rash on the left side of my lower ribs that extend around to my side and stomach, but goes away within minutes.
Ok i went to one doctor, he came in and started talking about my heart. Which i do have a low heart rate, usually in low 50's and high 40's. Thats been checked out by a cardioligist which diagnosed me with an arythmia and said a slow heart rate could be good down the road, thats another story though. Then i finally had to tell him, "Doc i came to see you about my neck." So he felt of my neck and confirmed something was there. So he continued on to my armpits and groin area, but very briefly. Prescribed some antibiotics, even though i had already tried that and no improvement. So i went to another doctor, unsatisfied with the answer i got. The doc walked in and told him exactly what i wanted. I said "Ive convinced myself i have some kind of neck cancer and want a ct scan or pet scan. He Quickly answer "I cant do that" without even checking me. Well he briefly felt of my neck and said he dont feel anything. Looked in my ear and said everything looks fine.
Im convinced i have some kind of neck or head cancer or some kind of lymphoma. So any input would be great. Sorry this is so long. Thanx
by Siluncd on Sat Feb 17, 2007 12:00 AM
by Rubywinkles on Sat Feb 17, 2007 12:00 AM
My suggestion to you is to go to another Doc get a second opinion. if you feel unsure.
My hubby had pain, in his chest , thats where his tumors were and itching. tireness, aches. which he went thru alot of test. Xrays, Galluim scans, Cat scans. Mris. just to name a few, Blood work. etc.
The sooner your get checked the better off your chances are. Blessings
On 2/17/2007 Siluncd wrote:Oh i forgot to mention the first doctor i went to did some blood test and he said my calcium was high. I went back yesterday and he did the blood work again i should know monday. I noticed last night this weird kind of itching, so i checked myself out for lymphnodes and i have a little bigger than a pea sized lump on the left side of the back of my neck. Oh i also went to an ent and the lump i thought was a mass on the front of my neck he said was just part of my bone structure. Im scared to death so pleas advise.
by Siluncd on Sun Feb 18, 2007 12:00 AM
by Rubywinkles on Mon Feb 19, 2007 12:00 AM
Sorry I didnt read you message throughly.
My hubby first went to our family doc, then he was sent to a lung specialist, then he was sent to a onocologist.
He has a series of tests, then had to have a byopsy. then we were told the kind of lympnoma he had. then the rest is history.
your worry is generally common, I would ask the doc if he can refer you to a specialist.
I wish you well
Dont give up.
by Siluncd on Mon Feb 19, 2007 12:00 AM
Hi there Again,
First went to doc thought he had pnuemona . but nope
The first test was a simple chest xray, that showed up like white ping ball size balls. thats when our family doc refer him to a pulmanary doc heart specialist. he did a scan of his test and when the Doc came in he said he couldnt do anything for us.
WE freaked, he said its not in your lungs which is good.So he refered us to the onocologist that specialized internist. general surgen and cancer. the byopsy was the sure factor that he had hodgkins. and the type he was dianognosed was hodgkins lymphnoma Bulky 2 B meaning he had more then 1 tumor. they did a test to see how many nodes it went into. the byopsy was the sure thing.
He had A gallium scan where they take a small amount of your blood , radiate it send it back through your system them take picuture. to see where the tumors might be. that was 1 test.
Everytime he breathe he had chest pain and his skin was dry and itchy. even when he brushed his teeth and the mouth wash made his chest hurt. Found out that if he drank a beer or alcohol pain would start. we were told that hodgkins can react to that. weird but its true.also. I would say it came and go on the pain issue. another thing.He didnt sweat.
He also was a strep throat carrier very chronic strep for years.
I am not saying that strep was the cause. but that was a issue brought up before.
Lympnodes are all over your body.lympnodes are also indicators for your immune system if they become inflammed they puff up.
I hope that helps.
Dont panic, Ask for a specialist., you pay for the service you should be allowed to have tests at your request.
But I do need to say, My hubby has been in remission for 7 years now. there is hope.
On 2/19/2007 Siluncd wrote:Which test found your husbands lymphoma? Did his pain come and go or was it there constantly? Did he have any lymphnodes anywhere? Any specifics that you wouldnt care sharing would be great. Thanx alot for your reply.
by LymphAmiee on Thu Oct 18, 2007 12:00 AM
I have just had a CT scan to check on my lymph nodes. They did a chest xray and that came back fine. This time I had a contrast medium orally and through IV. I have been having chest pain, but only intermittently. The pain does not worsen when I breathe. Sometimes the pain feels like it is deep inside my chest. The pain can get bad enough where it takes what energy I have left as I am extremely fatigued.
I also just had a suscpisious mole removed from behind my knee. I am back to the dermatologist (who ordered the CT) next week to have the stitches out and the results of the mole biopsy and CT scan.
It's hard not to worry as my mom was diagnosed with cervical cancer and passed away at age 44.
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