CT Scans - Necessary or Not

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CT Scans - Necessary or Not

by MaryPat_D on Mon Jan 19, 2004 12:00 AM

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I have recently completed treatment for breast cancer that involved a lumpectomy, chemo and radiation. I am now on Arimidex for follow up treatment. My question to my doctor is...shouldn't I have a CT Scan to be certain the cancer is truly gone? Since it did spread to my lymph nodes, I cannot help but feel the need to know that it no longer exists in my body. Someone, other than my oncologist, told me I should have a CT scan just to be certain the cancer is gone. I feel the need for closure here, so I too would like a CT scan. However, my oncologist does not feel it is necessary. Has anyone else experienced this situation or have any advice for me in pursuing this matter further? Thanks... Mary Pat

Ctscan

by Ella_E on Sat Jul 03, 2004 12:00 AM

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Hi Mary Pat, Cancer can be microspoic and not show on the scans. HOw are the tumor markers? if they are down then thing are probably okay. I had breast cancer diagnosis in 1999, had chemo, radaition and was put on tamifoxen. My biggest regret was that when I was a year out I did'nt ask for a bone scan and CT scans of organs, IN 2001 I had mets to bones and liver. Maybe the scans would have caught it sooner. The armididex you are taking is probably better then the tamifoxen. The studies have shown that it works better to suppress the estrogen positive cancers. I learned to go with what I feel I need and push the doctors to do it. It's your life not theirs. I still take oral chemo and Femara. Life is good enjoy it now that the treatment is over. Marie in North Carolina

CT scan

by Resourceful on Thu Mar 31, 2005 12:00 AM

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I had small left lump breast removed 2/2002, no nodes, lumpectomy, 1 cm, then put on arimidex; 90% estrogen + Progesterone positive. On 2/2004 they saw another small lump right breast but said since I had been on arimidex for 2 years it must be "the other kind of cancer but do not worry", I had lumpectomy - they did not check the one sentinel node during surgery as it looked "so pink and healthy" sent me home. Four days later called me said I had positive sentinel node, do not worry they could take care of it with chemo and radiation. The "lump" was 100% estrogen + progesterone positive ---not the other kind. you figure it out - the arimidex was worthless I took for 2 years. I demanded total body CT and MRI because if there was more cancer I wanted to know as I also demanded in 2 weeks to return and have axillary dissection and a complete mastectomy. They said CT and MRI (with dye both of them) were negataive - mind you both 1 1/2 weeks before my second surgery. They did not want to do this second surgery but something told me things were not right. I did have my axillary dissection and when they did my mastectomy at the same time (this was 2 weeks after the CT and MRI which was suppose to be negative) they found more cancer at a totally different place unrelated to the original lump I went in for. I know, and I am also told, some women's normal tissue is such that it does not differentiate between normal and early cancer and so for this reason I am going to elect to backtrack and have my left breast removed because if a CT scan and MRI fail to show cancer and arimidex does not deter me getting cancer - I think I am in deep water. I have now completed chemo and radiation (very horrible experience) and they just put me on Aromasin but I question if it is working as I have absolutely no feelings of any effects from it --the same as the Arimidex --I felt absolutely nothing - no hot flashes, no hunger, total no sensation 24/7. I am very concerned I am resistent to the Aromasin also and want to be P450 cytochrome pharmacogenetic enzyme tested but cannot find a place to test me to Aromasin. I paid to have myself tested for the Arimidex and found out I was hyperinductive to 1A2 pathway and the enzyme was passing thru me so fast metabolically that the arimidex did not hang around long enough to do any good. Now I understand about the Arimidex. The Aromasin is a totally different enzyme pathway 3A4, but I have been unable to find even a research/experimental university affiliated place I can go to for a consult for my genetic makeup for handling of the 3A4. Can anyone out there help me??????

ct Scans

by Cmk1953 on Thu Dec 08, 2005 12:00 AM

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Mary, I have just read your message and wondering why they shouldn't give you anything you need. Although Ct scans are micro, they can see other parts of your organs. This was the case for me last month when I went into get a chest Ct after my lumpectomy. They found densities on my liver, so they did a sonogram and found cysts not cancer at this point. Plus the markers were low, so I insisted to get a whole body scan after my chemo and radiation next spring. Doctors want to use their own protocol when it comes to treatment, but in my case I have gone through 3 surgeries, stage 1 to now stage 3 because some doctor didn't give me a test I needed 2 yrs. ago. So I agree with the woman who says it is your body and if you want to get a scan even if it means something else comes out of it, then scream at your doctor until he or she listens. Life is too precious God speed Colleen

Scans

by Beezie on Tue Dec 27, 2005 12:00 AM

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Mary Pat: I am telling you, after two bouts with two different types of cancer, you get them to give you any CT, body scan, MRI that gives you enough mental security to survive. I actually had a woman call me, diagnosed with breast cancer a year ago, done with chemo, and ask if her oncologist should have done a bone scan. I told her to ask for one and to her surprise he said "Oh, have we not done a bone scan?" -even doctors are not infallible and since it is us who have the darn disease - ask your doctor for anything you think needs to be done and if doesn't want to, find one who will. In fairness to the medical field, we have a survival rate unheard of anywhere in the world. But you are concerned about you, and he is probably concerned about healing multiple persons with cancer. I respect my doctors and my oncologist but I will decide what is necessary for me to mentally get up and win against cancer. Good luck to you. Beezie

Breast Cancer

by Regina1 on Sun Jan 22, 2006 12:00 AM

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I too recently had a lumpectomy in 2004...i did chemo and radiation.....in 2005 i had a lump growing at the site of my incision////i had a cat scan which showed a mass...the surgeon took off the lump..i did no radiation or chemo at this point...and this year the lump has grown back...i did a cat scan which showed a mass...if your doctor won't recommmend a cat scan find one who will

RE: CT Scans - Necessary or Not

by Southcarolinagrandma on Sat Jan 13, 2007 12:00 AM

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I am a 6 year survivor of breast cancer/5 year bone mets patient.  Before I had the mastectomy to remove my right breast, my surgeon told me I would have a bone scan, CT and other tests before I would even leave the hospital.  I am grateful for such a throual surgeon.  There were no signs of cancer in any of the lymp nodes (22 were removed) no signs of cancer with the scans.  I did 6 months of CMF chemo and was put on Tamoxifen right after I finished the chemo.  I did this for precaution as I am ER/PR+.....9 months after the chemo I am dx with bone mets in my left si joint and sacroam.  I underwent rads two different courses and was put on Femara.  I have been stable for about 2 years.  I would demand scans and I recommend any cancer patient demand scans. 

SouthCarolina_Grandma

RE: CT Scans - Necessary or Not

by Clynnof on Thu Mar 01, 2007 12:00 AM

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 About the CT scan you are referring to: Did your doctor give you a PT  or pet scan before doing surgery?  This scan goes over all of your body to scanning for cancer elsewhere in the body.  My oncologist wouldn't proceed without it being done.  It is fairly expensive, but well worth it.  It is also a fairly new machine.  I also had a lumpectomy that had not reached the nodes yet.  Every time I have a new pain I wonder if the cancer has spread. I am 51.  I have had cysts all of my adult life.  I did take hormone therapy and I am hormone possative taking Femara.  I recently went in for a colonoscopy and had two polyps removed. It is not that I want my history out there but if it will help..........  clynnof

RE: CT Scans - Necessary or Not

by gpwhale on Mon Jul 02, 2007 12:00 AM

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On 1/19/2004 Mary Pat D. wrote:

I have recently completed treatment for breast cancer that involved a lumpectomy, chemo and radiation. I am now on Arimidex for follow up treatment. My question to my doctor is...shouldn't I have a CT Scan to be certain the cancer is truly gone? Since it did spread to my lymph nodes, I cannot help but feel the need to know that it no longer exists in my body. Someone, other than my oncologist, told me I should have a CT scan just to be certain the cancer is gone. I feel the need for closure here, so I too would like a CT scan. However, my oncologist does not feel it is necessary. Has anyone else experienced this situation or have any advice for me in pursuing this matter further? Thanks... Mary Pat

 

RE: CT Scans - Necessary or Not

by Matt1 on Thu Dec 06, 2007 12:00 AM

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Dear Mary Pat,

I too have cancer but I have to say the only real true tests that show cancer cells or infected tumors is a PetCT or a biopsy.  I had a mammogram, ultrasound, MRI and a CT scan and all showed no sign of cancer.  When I asked my doctor for a biopsy he recommended to wait 2 months.  Thank god I did not.  Going into surgery he gave me a 97% chance that there would be no cancer found.  He was shocked to find out he was wrong.  

You know your body more than anyone else.  Do what you think is necessary for your own peace of mind. And best wishes to you

 Stacy

 

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