Mgus Forum

On 3/1/2007 Commonsense2265 wrote:

 

On 2/21/2007 Swong64uk wrote:

Dear All,

I found your forum while searching for Curcumin info.

I started a Yahoo group in 2005 as I could find little support and info for people like me with Mgus.

We have a few members who have found forum somehow... but seeing the Mgus  messages here I thought it may be useful to let others know it is there in case it is helpful for some.

Hallie ...you can store some of your useful links and info there too :O) 

 I am High risk Mgus  so always keen to share with others  what may help us prevent progression in the few that do.

I am young retired nurse .....43  with a young daughter so am very interested in my condition and if  I/we can help anyone going through that first scary time at diagnosis it would be good  or learn anything helpful from each other.

The Yahoo board 

 http://health.groups.yahoo.com/group/MGUSSupport/

 

Best Wishes

Sue 

 

Dear Sue: Please read my message to Petrabut I have wonderful news for you.  I am a retired Oncology nurse. (Gynecology Oncology was my specialty) I was diagnosed with full blown Multiple Myeloma stage 4 (my oncologist says stage 4 is death) in October 2004.  I am now in complete remission.  My cousin was diagnosed 6 months ago and is now in complete remission.

I used a supplement called poly mva  www.polymva.com  www.facr.org for survivor stories. I believe in alternative medicine and I would not be alive today without it.  Poly MVA in 6 months totally cured my cousins mugus and his doctor is astounded.

Because I was so far gone no one even gave me any hope with Revlamid or Thalidamide etc but I chose not to use any of that. I did 10 days of radiation for the pain, 2 weeks of dexamethasone but it made me worse. The rest was alternative treatments.  As I said anyone who wishes more information my email is commonsense2265@yahoo.com

I sometimes contribute to Yahoo answers and I note several people have "been anti natural" One poor lady was asking for alternative help and a medical professional said there is no such thing.  I am living proof and hundreds of others are, that is does work.

Positive attitude, diet, bio feed back and many factors are what keep you alive and healthy.  Please take this if you are interested in it.  If you do not belive in such things that is also your choice.  Have a wonderful day.

Elaine 

 Sue I forgot to mention my cousin had MGUS not active Multiple Myeloma.

 

Hi Elaine! Did this supplement really work for you and the others you mention? If so, that is pretty amazing. What amount did you purchase? I have MGUS and am thikning about this. Right now I (and I have eaten this way for a long time) I eat a lot of organinc fruit, veggies nuts and seeds, lots of whole grains, etc..the usual good stuff. I do take some supplements such as super green powders, extra garlic, green tea and turmeric, etc. I also ordered some nerve Support and Myelin Sheath Support supps. I am pretty much a vegetarian and vegan because I read that animal proteins can cause problems with the immune system an dcause some of these attacks, etc.

I have found other immune enhancing supplements but this looks interesting.

did you do anything else or avoid gluten, for example? 

Sue-

I manage a myeloma website, forum, etc and curcumin supplementation comes up often- especially for mgus.  Google Margaret's Corner as Margaret is the unofficial curcumin queen and has lots of curcumin info, studies, etc. on her blog.  Also, this is the curcumin subject page within beating-myeloma.org-

http://beating-myeloma.org/ subject/curcumin" target="_blank" rel="nofollow">http://beating-myeloma.org/ subject/curcumin

David Emerson

http://beating-myeloma.org/