Quality of Life after Whipple

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Quality of Life after Whipple

by Herkamer on Wed Feb 21, 2007 12:00 AM

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My dad is 71 and just diagnosed with pancreas cancer.  It is in the head and wrapped around common duct. Stage is T20 and not metastized. He is scheduled for whipple next week, but wondering if his quality of life will be any good after.  He does not want chemo or radiation and wants to enjoy the time he has left.  We are all looking for answers.  He is otherwise very healthy, rides bike and eats right. We do not want to go through such a radical procedure if he will only spend his final years feeling worse.  Please help.    

RE: Quality of Life after Whipple

by Rt4jc on Wed Feb 21, 2007 12:00 AM

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On 2/21/2007 Herkamer wrote:

My dad is 71 and just diagnosed with pancreas cancer.  It is in the head and wrapped around common duct. Stage is T20 and not metastized. He is scheduled for whipple next week, but wondering if his quality of life will be any good after.  He does not want chemo or radiation and wants to enjoy the time he has left.  We are all looking for answers.  He is otherwise very healthy, rides bike and eats right. We do not want to go through such a radical procedure if he will only spend his final years feeling worse.  Please help.    

We had the same decision to make last month.  With all the research we did, it seemed there would be longer life, but also more pain/discomfort after whipple.  Chemo is standard follow-up after the surgery.  You can expect your father to be diabetic.  There's also considerable risk (up to 50%) of complications during or after surgery.  Not being metasticized could greatly improve your outcome, but sometimes what they see now is not what they find when in surgery.  You can find some very helpful experiences on the history of this sight, or at pancan.com, or by searching google for whipple surgery.  Some were positive, yet prolonged recovery.  Given these testimonials and the advanced stage my dad was in, he chose not to have the surgery after being diagnosed early in Jan.  He takes pancreatic enzymes.  Lack of appetite and itching are his main afflictions.  He did well the first month, but is now growing weaker and more uncomfortable.  Yet, he isn't in enough pain to take pain meds.  He is alert and able to think clearly.  He is getting his affairs in order. 

Ours is only one situation.  I recommend doing a lot of research with cancer websites.  Be informed.  Some doctors are much more experienced with whipple, therefore, would be a better choice if you go that route.  It's a very long, complicated surgery.  My dad chose least invasive treatments, but I believe his quality of life is much better than if he had chosen surgery.  He will be having a stent placed to drain his pancreas, with the goal of relieving the itching.  We're looking into hospice care for his remaining time.  I hope this helps you some.  I will pray for you- it's a hard season to walk through.  May God go with you each step.

RE: Quality of Life after Whipple

by Lehmans on Sun Feb 25, 2007 12:00 AM

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Sorry to hear about your Dad.  My mom had the same surgery at Johns Hopkins in September and seemed to do well with the surgery.  Investigate the facility and the surgeon doing it.  Hopkins is know to have the best recovery rate for whipple surgery in the United States.  If you have someone in your family that is a nurse, engage their help.  I thank God every day that I have a nursing degree and was able to help my Mom day and night before and after this surgery.  If you have lots of questions I don't know if I can help and I don't want worry you but I would b gld to talk to you.  Hope all goes well with your Dad and just have faith.

 

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