Patti thanks for the information. You are right it is so helpful to talk to others, it took me awhile to find this sight. Yes I have trouble with reflux when I am using the feeding tube, I also have to be in my recliner. I have also noticed when using it, the next morning getting up the reflux is bad.
I did not have it in my lumph nodes. The doctor wanted to do a complete gastrectomy, but when he got in there the cancer was stuck to my colon, so he thought I was a much later stage than I was. I am a stage 2. When the pathology reports came back there was no cancer in the colon either. I feel very lucky for that. This is a horrible surgery to go through, your son is so young!! Is he able to eat at all? What stage is he? Does he have trouble sleeping in a bed? I am, the reflux is so bad. My sister had this 2years ago, and she is still sleeping in her recliner. We both had a less then 1% chance of getting this, and here we both have had it. In our genes somewhere.
Please let me know how your son is doing. I will keep him in my prayers, that is what keeps us going!
Katrina