Radiation

Patti yes please get your daughter scoped. The doctor said my sister and I had less than 1% chance of getting this.  He said it is in our genes somewhere. Now the rest of our brothers and sisters have been scoped, and will get scoped every year. My daughter which is only 30 has been scoped also. 

I really hope he can get some nourishmenet to gain alittle weight.My first treatment was yesterday, and I was sick at my stomach by the evening, but today I am feeling better. I went home and ate a sandwich and am wondering if maybe I should wait awhile before eating after the treatment.  Good luck to your son, please keep me posted.

Prayers are with you

Katrina

We are back in the hospital.  Bubba was having trouble eating as well as with the feeding tube (reflux and nausea).  He was de-hydrated and they are giving him mega doses of fluids and anti-nausea drugs as well as feeding tube feedings.   He was feeling a little better this morning.

Hope your radiation treatments go alright.

Patti

We just got out of the hospital - they admitted my son on Monday.  He was severely dehydrated, low blood count and unable to eat or use the feeding tube due to pain in the abdomen region.  They gave him mega doses of fluids and potassium, booster shot for his white blood count and change his feeding tube from Jevity to Osmolite.  They did an endoscopy yesterday and determined that there is no problems with the surgery - everything looked very good except for the inflammation from the radiation.  The doctor prescribed Reglan and Carafet (I know I probably didn't spell them right).  The Reglan is to stop the Reflux and the Carafet coats his esophagus to help with the pain.   They are both working except that he is having anxiety attacks when he takes them.  The doctor doesn't understand why this is happening but every single time he takes them, he has one.  We came home tonight and I told him to try and take them at separate times rather than at the same time, so we will see.  Any way, he has been able to use the feeding tube constantly (with no reflux) and able to eat by mouth also.  He is still having the cramping - that hasn't gotten any better.

Just wanted to update you and see how you are doing also.  Hope your radiation treatments are going OK.  Hang in there - you can do it.

Patti 

On 3/8/2007 Pabbygirl43 wrote:

We just got out of the hospital - they admitted my son on Monday.  He was severely dehydrated, low blood count and unable to eat or use the feeding tube due to pain in the abdomen region.  They gave him mega doses of fluids and potassium, booster shot for his white blood count and change his feeding tube from Jevity to Osmolite.  They did an endoscopy yesterday and determined that there is no problems with the surgery - everything looked very good except for the inflammation from the radiation.  The doctor prescribed Reglan and Carafet (I know I probably didn't spell them right).  The Reglan is to stop the Reflux and the Carafet coats his esophagus to help with the pain.   They are both working except that he is having anxiety attacks when he takes them.  The doctor doesn't understand why this is happening but every single time he takes them, he has one.  We came home tonight and I told him to try and take them at separate times rather than at the same time, so we will see.  Any way, he has been able to use the feeding tube constantly (with no reflux) and able to eat by mouth also.  He is still having the cramping - that hasn't gotten any better.

Just wanted to update you and see how you are doing also.  Hope your radiation treatments are going OK.  Hang in there - you can do it.

Patti 

I am so sorry he has had such a rough time, looks like things are looking up for him. I see the doctor tomorrow he said he might put me on the carafet I am now taking a dose of reflux medicine in the morning and at night.  I am getting sick every morning, and feeling sick during the day. Not sure if it is the reflux or the radiaiton and chemo this week.  The doctor said the 3rd week would be the start of the worse.Wish I could get this nausea under control now.

It is great he is eating and able to use the feeding tube.  When will he start treatments?

Katrina

On 3/11/2007 Katrina1 wrote:

 

On 3/8/2007 Pabbygirl43 wrote:

We just got out of the hospital - they admitted my son on Monday.  He was severely dehydrated, low blood count and unable to eat or use the feeding tube due to pain in the abdomen region.  They gave him mega doses of fluids and potassium, booster shot for his white blood count and change his feeding tube from Jevity to Osmolite.  They did an endoscopy yesterday and determined that there is no problems with the surgery - everything looked very good except for the inflammation from the radiation.  The doctor prescribed Reglan and Carafet (I know I probably didn't spell them right).  The Reglan is to stop the Reflux and the Carafet coats his esophagus to help with the pain.   They are both working except that he is having anxiety attacks when he takes them.  The doctor doesn't understand why this is happening but every single time he takes them, he has one.  We came home tonight and I told him to try and take them at separate times rather than at the same time, so we will see.  Any way, he has been able to use the feeding tube constantly (with no reflux) and able to eat by mouth also.  He is still having the cramping - that hasn't gotten any better.

Just wanted to update you and see how you are doing also.  Hope your radiation treatments are going OK.  Hang in there - you can do it.

Patti 

I am so sorry he has had such a rough time, looks like things are looking up for him. I see the doctor tomorrow he said he might put me on the carafet I am now taking a dose of reflux medicine in the morning and at night.  I am getting sick every morning, and feeling sick during the day. Not sure if it is the reflux or the radiaiton and chemo this week.  The doctor said the 3rd week would be the start of the worse.Wish I could get this nausea under control now.

It is great he is eating and able to use the feeding tube.  When will he start treatments?

Katrina

He has completed all his treatments - he just needs to get his strength back and try to put some weight back on.   He had a pretty good weekend.  The new meds seem to be working but causing some anxiety attacks.  We are hoping that these will subside when he gets more use to the medicine.  (He is getting Reglan and Carafet - taking both every 6 hours)

Are they giving you a shot in the stomach before your radiation treatments?   My son took a shot every day for the first 4 weeks in the stomach (Ethyol) to prevent damage to his vital organs.  The shots made him deathly ill.  He would start vomiting within  15-20 minutes after he got the shot.

Hope everything goes well for you.  Stay in touch.

Patti 

No I have not gotten any shots, that sounds horrible. I hope they get his anxiety figured out, that is not good.  So now he really starts the healing, good for him.  I will let you know whiat the doctor tells me this morning. Everytime I eat it is like it burns my throat, and the sores are starting in the mouth again, I hate those.

Good luck to your son, sounds like things will start turning around for him. I have heard it takes awhile after these treatments to gain  your strength.

Katrina

Hi,

My mother was diagnosed w/ linitis plastica, she had a sub total gastrectomy last Feb 14, 3/4 of the stomach was removed, so far she was able to recover fast, she's regular meal now.  We just finished our 1st two days of Chemo ( March 12 & 13), one more tomorrow.  We were also told that she has to go Radiation therapy, that it will only take 10-15 mins, no pain, the only effect will be like sunburn on the stomach area.   She will be on radiation for 25 days and chemo also for 6 cycle, she was diagnosed at stage3.  So far as I look at her she was very strong, she's been eating regulary and her faith to God is very very strong....... i'll update you of any developments, we need to be strong for them.........keep the faith.