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Just Diagnosed Stage 1B

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Subject: Just Diagnosed Stage 1B
Date: 02/24/2007
Hi... I was just diagnosed with a stage IB melanoma, it was removed from my back, a .95mm and a clarks level 4.  My doctor told me it would be fine.  I live an hour away from MD Anderson, however my doc told me that this was a scary place and that for my stage they would be able to handle everything with a WLE and SNB and follow up.  I am somewhat concerned about reoccurance. 
Caregiver
Caregiver
Yacheezes
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Subject: RE: Just Diagnosed Stage 1B
Date: 02/25/2007
always go with your gut feelings  go get second option there are doctors out there that know so much about melanoma talk to them.just for piece of mind. god bless
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Caregiver
Dean in Georgia
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Subject: RE: Just Diagnosed Stage 1B
Date: 02/25/2007

 

On 2/24/2007 Challygirl wrote:

Hi... I was just diagnosed with a stage IB melanoma, it was removed from my back, a .95mm and a clarks level 4.  My doctor told me it would be fine.  I live an hour away from MD Anderson, however my doc told me that this was a scary place and that for my stage they would be able to handle everything with a WLE and SNB and follow up.  I am somewhat concerned about reoccurance. 

You living only an hour away from MD Anderson is great for you, we lived in Atlanta and had to travel.  You have the world's best faculity at your back door.  Run don't walk to MD Anderson.  Don't bother with the small independent doctors, this is your life you are talking about.  If you are familiar with this site you would know how many people said their doctor said they were fine and then it only to re-occur.

MD Anderson is not a scary place.  This organization makes you feel you are the only patient.  I can't believe a doctor would say that to a patient. 

 

Doctor / Nurse
Doctor / Nurse
Oncrx
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Subject: RE: Just Diagnosed Stage 1B
Date: 02/26/2007

 

On 2/24/2007 Challygirl wrote:

Hi... I was just diagnosed with a stage IB melanoma, it was removed from my back, a .95mm and a clarks level 4.  My doctor told me it would be fine.  I live an hour away from MD Anderson, however my doc told me that this was a scary place and that for my stage they would be able to handle everything with a WLE and SNB and follow up.  I am somewhat concerned about reoccurance. 

 

I tend to agree with your doc.  Stage 1B has a 5 yr sirvuval of 91% and a 10 yr survival of 83%.  So the chances of recurrance should be slim after WLE and SNB.
Subject: RE: Just Diagnosed Stage 1B
Date: 02/28/2007
My daughter was told the same thing Jan 2000, came back in Oct 2005 she is now under care of MD Anderson, they are keeping her alive....they have top notch people there that KNOW melanoma.....GO THERE NOW.
Subject: RE: Just Diagnosed Stage 1B
Date: 03/22/2007

Just saw your message today, so I assume you've had your surgery.  I was diagnosed in 2003 with stage 2.  Negative sentinel nodes (4 of them!  all negative).  I had surgery and follow-up at the Melanoma Center at  Johns Hopkins in Baltimore, and two years of follow-up.  God bless'em and Dr. Charles Balch.

 I too am terrified of recurrence.  I have twice yearly comprehensive skin checks by my local dermatologist.  I've had two episodes of actinic keatosis, small pre-cancerous lesions - one on my finger, and 2nd one on my arm.  Both removed by liquid nitrogen treatment - once only does it.  It blisters up and looks butt-ugly, then heals totally.

 Here's my kicker.  A year after melanoma (or Mel, as I call him), I was diagnosed with breast cancer during a routine mammogram.  My first thought was that it was a recurrence of Mel,  but it was not. Struck by lightning 2 years in a row. ( I could hardly wait for my colonoscopy.) After breast surgery  and radiation, I'm still OK, but I don't take anything for granted. 

 Be vigilant.  Get anything that looks suspicious checked.  Insist on a biopsy.  And get a totaly body skin check every 6 months. And spread the word to your family members to be vigilant of skin changes.

Good luck to us all. 

  

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