One patient with glioblastoma still alive nine years later
by Sweetsteffers04 on Wed Feb 28, 2007 12:00 AM
My boyfriend has had glioblastoma grade 4 for about 2 1/2 years now. He is only 21 years old and was diagnosed when he was 18. We tried so many different treatments, but the 4th time it came back he could no longer fight it and it has now spread all over his brain. He is very sick and weak right now and may only have a few more days to live.
I was just wondering if there is anyone that has actually survived it? Has anyone heard of anyone getting pass this type of brain cancer to live a normal life. I heard a story of a man who lived 5 years after being diagnosed and i just wondered if this is always a terminal cancer?
by Kewlsense on Wed Feb 28, 2007 12:00 AM
by Revibug on Thu Mar 01, 2007 12:00 AM
Ugh, I am SO sorry that you're dealing with this...
I'm around your age- 25 next week- so I feel your pain. This disease is horrific, but in younger patients I guess it hurts more, if you know what I mean.
You said you've done everything? Where is he being treated??
I don't wanna be the bubble-burster/mean one/depressing one, but yes- generally this is a terminal illness. There ARE people who survive, but not if the tumor has spread so aggressively. I know this because my mom was doing well for a while- about a year- but just a few weeks ago the tumor spread, crossed the midline, and is everywhere. Believe me, we did everything too! Best doctors, best hospital, best care, etc.
This sucks bigtime.
See if you get a response from Linda(Madeline Ruth), Jennifer, Amnia, Bob, or any other "regular" who has dealt with this for a while. They, like us, have been fighting long and hard. Jennifer and Madeline just lost their beloved mother, and Bob's wife is fighting like a true champ! My mom, too, is hanging in there- but you know, it doesn't look good.
I hope you don't think I'm mean or whatever, but I know that when MY mom was declining, I wanted to know EVERYTHING! Bad, good, sad, happy- I wanted to know it all.
Write back and update us. We, through our tears and struggles, always write back and keep each other posted on a daily basis.
We're all praying.
Love, Revi (NJ)
...oh yeah, one more thing-
Just to clarify- I'm not saying this is the end; I'm not saying give up; I'm not saying radiation, chemo, alternative treatments, holistic, and other approaches don't prolong survival. I'm not saying there are no miracles.
I'm just saying that it's not a good situation, and I think any of my friends here on this board would agree.
My mom is 49, which is considered young, so I also belong to Young Adults Surviving Glioblastoma. Check the forum out at www.yasg.com
You have to go under 'guest book' where it says FORUM and click and you'll see the thread.
by Willing on Thu Mar 01, 2007 12:00 AM
by Our3sons on Thu Mar 01, 2007 12:00 AM
by Tooyoung22 on Thu Mar 01, 2007 12:00 AM
Just wanted to say wow and thanks I think we all need that reminder to remain strong and positive through out this battle and that it is possible to win.
It really hits home today for me as my 22 year old boyfriend, 7 month fighter, goes in for another MRI to check on the effect of the radiation/chemo tomorrow. Im Keepinh my fingers cross. He is doing great with all the treatment so we are hoping that means he is beating this thing.
Never give up hope!
by Madeline_Ruth on Thu Mar 01, 2007 12:00 AM
On 2/28/2007 Sweetsteffers04 wrote:My boyfriend has had glioblastoma grade 4 for about 2 1/2 years now. He is only 21 years old and was diagnosed when he was 18. We tried so many different treatments, but the 4th time it came back he could no longer fight it and it has now spread all over his brain. He is very sick and weak right now and may only have a few more days to live. I was just wondering if there is anyone that has actually survived it? Has anyone heard of anyone getting pass this type of brain cancer to live a normal life. I heard a story of a man who lived 5 years after being diagnosed and i just wondered if this is always a terminal cancer?
by Sweetsteffers04 on Fri Mar 02, 2007 12:00 AM
Thanks everyone for all the information. I just felt that everytime I googled glioblastoma it was made out to be a terminal disease.
My boyfriend's tumor was located in the middle of his brain and could not be operated on so we mostly did Chemo and Radation. For a while it seemed like he was going to beat this, yet it kept comming back, and the last time he just had a stroke and had to get off of his Chemo for a while, this caused the tumor to spread all over his brain and get pretty sick. He got on Chemo again, but this time it didn't work.
Thanks again everyone!
by Sleepingonthejob on Sat Mar 03, 2007 12:00 AM
I know Peter D. that Bridgett mentioned in her reply. He used to volunteer with my father at the Hospital of St. Raphael. He was also a member of the support group Eric and I used to visit. He is an amazing person. He moved to Arizona a couple of years ago, but heard about and sent a very warm card when my father passed away from lung cancer on December 11, 2006. He loves to share his story and encourage others to never give up. 13 years and counting......
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