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Vaginal Cancer Dx

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Subject: Vaginal Cancer Dx
Date: 03/14/2007
I have been diagnosed with vaginal cancer.  Well, I guess that's the final dx, although intially it was cancer of unknown primary.  It was felt that the vaginal lesion had metasticized from another area.  In spite of continued testing and searching, no primary site has been found.  I have only the vaginal lesion and possibly one lymph node in the iliac chain involved. I was first diagnosed last September.  I have had 6 months of chemo (taxol and carboplatin) and am now having 35 external and five internal radiation treatments with chemo (cisplatin).  I have had a really hard tmie getting any info b/c everyone seems to think that this type of cancer is rare.  I have adenocarcinoma but it is not related to DES exposure.  I am writing to see if there is anyone else out there who may have had a similar experience.  I also am not able to get a stage or prognosis.  The doctors just keep telling me it is unusual and they don't know what to expect,,,during chemo my tumor (initally 4cm) completely resolved.  I am in the middle of the radiatin cycle and finding it hard to stay positive about the outcome.  Does anyone have any info they can share regarding their experience with vaginal cancer?

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