hello I'm 45 years old and have been dealing with metastic pheochromocytoma since 2001. In 2001 I had a adrenalectomy, in 2005 July again they tryed to resect it,and again same year in October the same thing. In December 2006 I had a radical neck disection and thoracotomy. The nodes in my neck were positive for the pheo but my chest was clear. In July of the same year I had a retro peritoneal dissection done with positive tissue also. Again there is not much info out there regarding this type of cancer. The only way they seem to be able to pin point it is with a pet scan. We live in Nova Scotia (Canada)and the closest place for us to get this scan is in Sherbrooke, Quebec. If anyone has any contribution to this matter please advise