Dear Diane R.
I saw that you sent at least five messages, (all the same), but today is the first time that I received notification.
I am sorry to hear that you declined chemo and radiation treatments in the beginning. Pancreatic cancer is one of the deadliest cancers out there. In any case, with regard to my treatments being so devastating, it was because of the protocol of 24 hour infusion of chemo at the same time as 5 days a week of radiation. The nausea was terrible for me...it may not be as bad for you. Everyone reacts differently. There was nothing that helped me with my nausea or vomitting. I tried kytril, compazine, adavan, and some others. In the end the doctors even tried marinol, (the closest thing you can get to marijuana and still be legal...that didn't work either. In addition I had a battle with mouth sores, red hands, and extreme fatigue. But to me the alternative was much worse.
As far as keeping up your strength...bed rest is probably your best bet. During treatments you are going to need to get as much rest as possible. It is also important that you try to eat something. The best thing for me to eat during all of this was a bowl of Cheerios with half a banana.
At stage I...I would think that you have a very good chance of beating the odds...look at me; I was stage III and I am a four year survivor.
Good luck to you and I will pray for your recovery. Again, my personal email address is probably the best for further communication. Please do not hesitate to contact me at anytime with any questions. I know how difficult this can be at times. I am also a member of the Gilda's Club. Take care...Russ