On 5/17/2007
Cbattr wrote:
Hello:
My sister has been diagnosed with leomyosarcoma in her lower right pelvis. Dr.s are saying she needs to have surgery and will have to have all vital organs in that area removed to be able to extract the tumor. She doesn't like that answer. Does anyone have any suggestions? Has anyone experienced this? She has gone to the Cancer Treatment Centers of America, which does not have a sarcoma team and she has also gone through Karmanos in Detroit, MI, but has not accessed their sarcoma team.
Any suggestions? Any ideas on the best treatment team in the country or a specific doctor who can help?
Thanks.
That sounds pretty radical to me! I wouldn't let someone remove so many organs without a lot of research and information first!! I was diagnosed last August with Stage IV lms which had started in my uterus. My oncologist did not operate because of the number of organs with metastasis, and instead started me on a chemo regimen of gemzar and taxotere. I am also taking complementary meds., and I have to tell you, I've been doing very well. As of my last scans, about 6 weeks ago, I'd gotten rid of the cancer in my lung, breast, liver and hip. I only had a little left in my uterus, and some in my spine. We're now stopped the original chemo drugs to give me a chance to get back energy and get rid of side effects and are using Femara (an estrogen suppressant) as well as Avastin (a biologic drug), and I've added a few things to my complementary arsenal, and I'm feeling wonderful. My next scans are in June, and I plan on being cancer-free! I've heard often enough that the MD Andersen Cancer Center in Houston is the best in the country, so you may want to contact them. They seem to be on the cutting edge of all the new cancer research and ideas. The best of luck to you. Feel free to contact me if I be of any further help! Karen :)