Hi Cathy,
My husband wanted to send this note to you. He is through with his treatment by about 1 month. He is still on the tube, but is starting to eat again. Here is what he said. Please pass this on to your husband.
Even though I didn't want to at first, the one thing I'm most positive about is my eventual decision to go with an external stomach tube. In my case, it was quite painful for two weeks, but eventually things settled down. Some patients adapt in two days rather than weeks. The result was I didn't have to suffer eating painfully and watching my weight decrease down down down at the same time. The idea seemed gross at first, but the tube was easy to learn how to use, and became very helpful later when it became too difficult to swallow pills and we switched to liquid medicines instead, administered through the tube.
I can't imagine EVER going through treatment again without a tube--no way!
Jeff
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