On 7/9/2007
Honeybee68 wrote:
Hi,
I'm in the same boat - new MGUS dx, feel like I'm a ticking timebomb, and don't want to live my life 3-months at a time between follow-up visits. To complicate matters, I have a spinal cord injury so I already have a bunch of weird aches and pains that makes it that much more difficult to figure this out.
How are you doing??
Melissa
I am sorry I haven't responded to your message before now. I am just figuring out how to use this site! I have been in and out of the Mayo Clinic. I was misdiagnosed at another institution and now the Mayo Cllinic tells me I have Multiple Myeloma and secondary amyloidosis. I guess you could say I feel like the other shoe has fallen. My MM is stage 1 but I now feel like I am waiting to have it progress. Maybe I will feel better when I now a plan. I am still in testing stages and just wish it would all go away.
Cindy