On 9/4/2007
VOLPEAVOL wrote:
Hi Cindy,
I was diagnosed with MGUS in 2005, after a bllod test becasue of extereme fatigue, back pain and recurrent shingles. I have had no progression, but have a blood teste each year.
I asked many questions of my DR. he says I have a moderate risk of deveoping Myeloma, as about 25% of those with MGUS will eventually progress.I do have recurrent infections, low immunity and resistence to infections, and low energy in general. Dr. says these are not related to MGUS, btu when i read his report to my GP, he said MGUS could be associated with chronic infections and autoimmune disease.
I feel like this is a time bomb. I wonder how much time I have before things progress.
I was diagnosed with MGUS in 2000. I kept complaining to my Dr. that I was extremely tired and achy all the time and didn't have any ambition. I am monitored by Roswell Park Cancer Institute and have remained at the MGUS status now for 7 years with no sort of treatment. When I tell the oncologist at Roswell that I ache and am tired all the time, he tells me it has nothing to do with my MGUS status. Yet when I read some of these questions and statements from people on here, they say they have extreme fatique and have trouble walking, etc. I too have trouble walking.......hurts.....so I walk slower than anyone else I am with. I am 50 years old right now and when I stand on my feet for hours for my part time job bartending, I am in a lot of pain by the end of the night and the following day. Thank goodness, I sit at my day job in an office!!
So....now I believe that my achyness and tiredness truly is from the MGUS status. Does anyone else have these same symptoms?