On 1/17/2008
GillyB wrote:
Dear Jane
How are you ? I was so sorry to hear you are going through the same type of hell we are. Like you the NHS has been of little help to my partner who was told he had Myeloma two and a half years ago, this like you has turned our world upside down. His igg is at its highest 41 this goes down to 29 some months which no one gives a reason for. His bone marrow plasma is at 20 but patchy. I am not sure if he has Mgus or Myeloma as even his notes have question marks on them.Please take heart that there are others wishing you well and hope you find some comfort in that.
Best wishes to you
Gillian.
Thanks for the reply, I am 42 now, I was 37 when diagnosed with the MGUS. My last bone marrow over a year ago was 13% and my last Igg was 42. I am still MGUS but I am waiting for another Bone Marrow on the 28th Jan, it was supposed to have been done on the 7th Jan but I had yet another chest infection so my haematologist cancelled the biopsy. I thank you for all your good wishes and I wish you all my best wishes too. x