Mucosal Melanoma Of The Anal Sphincter

I understand mucosal melanoma is very rare and would like to hook up with others out there who have been dIgnosed with mucosal melanoma in any area of the body. Questions for sharing and discussion: Where was the melanoma? How was it discovered? How far along was it? Immediate action taken? Surgery? Sentinal node removal? Interleuken 2/ Interferon/ GM-CSF? What has worked especially well for you? Any particular books you would recommend? I would like to have those patients living with mucosal melanoma support each other, help with information, share what works, what doesn't.