On 7/6/2007
Linda l wrote:
It has been 3 years since I posted my first message of being in remission. I have remained in remission with no reoccurences. My cancer was diagnosed as stage 4. I underwent surgery ,removed half of bladder, colon resection and hysterectomy . I underwent chemo for 6 mon. It was agressive Gemzar and Cistplatin. Except for a back injury and osteoporosis I am doing well. I now Know my surgeons and oncologist are the best around. I thank God for every day. It is still a battle, but worth the fight. Dr. Songbird are you still using this sight? God bless to all who fight this rare cancer. Never give up. Linda L.
I am a survivor too. I was diagnosed with urachal cancer in early February 2006 and underwent surgery on 1 March 2006. A tumour the size of a tennis ball, emanating from my urachus and pressing on the top of my bladder, was removed, along with a mass of jelly spreading up to my liver. Half my bladder was also removed, but my belly button was left untouched - the scar just zig-zags round it! My lymph nodes were not affected, and the tumour had not spread, apart from creating the mass of low-grade jelly in my abdomen.
I was subsequently referred to an oncologist, who confirmed that I had a urachal mucinous adenocarcinoma, which falls into the general category of PMP (pseudomyxoma peritonei), so I was referred to a PMP specialist clinic in the UK, where I now have regular CT scans and follow-up interviews with a consultant surgeon.
Since my operation I have made excellent progress. I have had no chemo treatment and no further surgery. I have been told both by my oncologist and by my consultant surgeon that I am currently in remission and that they don't need to see me for another six months.
I am 65 years of age, I feel fit and well, I play golf regularly and walk my dog for a mile each day. I was able to go skiing in January 2007 and I plan to go skiing again in January 2008.
I worry a bit about the future, but my philosophy right now is to enjoy life to the full. I hope this gives hope to fellow-sufferers.