I'm glad to find this site, since this disease is so rare. It is so different than other diseases. My husband was diagnosed February 2006 with myelofibrosis. We were sent to M.D.Anderson for evaluation and treatment in May 06. He started a clinical trial in June of 06. He was given chemo for 5 days, then wait 2 weeks, then another round of chemo. He has had 14 cycles of chemo. He is 68 years old and was told that BMT was not an option for him. He works but fatigue is a big issue.