Lea,
You mentioned that you have sarcoma in the GI tract. I'm wondering if you have gastrointestinal stromal tumors (GIST)? This used to be classified as Leiomyosarcoma, but is now separate. It is fairly sucessfully treated with the new drug Gleevec. There is a test called "c-kit" which tests for GIST.
I also have leiomyosarcoma. It all began years ago as a uterine fibroid. I have gained much knowledge and support by joining the ACOR support group for LMS. If you haven't joined, I would highly recommend it. Go to www.acor.org and click on mailing lists.
I wish you good luck!
Beth in California