Hi! I really need some feedback from anyone who has experienced ascites. I was diagnosed last August with Stage IV, Leiomyosarcoma, and have been determined to beat it despite the "statistics"! I've done pretty well, and just had a hysterectomy on 6/26 since the original tumor was the only real site left with activity in it. We'd also hoped that removing that would stop the fluid build-up, ascites, that I've had for months now. I've been going in to get tapped about every 5 days, for months, with the usualy amount drained being in the 4-5 liter range! Now I have a temporary drain which I detest! I'm still producing a lot of the ascites, and my oncologist seems to be baffled at its source, even though I'm being treated at Northwestern Memorial in Chicago, considered to be a top-notch cancer center! Has anyone had similar experiences with ascites? If so, PLEASE let me know how you resolved it. Thank you, Karen