There is unfortunately a very real shortage of information about EHE ... I have stated a blo about myself that you are welcome to look at and comment on ... I don't know what this feels about adding links to posts etc so I'll put the address in lower down so a mod can delete it without having to edit the whole post ... if they do delete it go to google and search for living with EHE ... it will return a wordpress site .. and that mine
Darran
address is http://darran1066.wordpress.com/