On 9/14/2007
Suncloud wrote:
That was a wonderful reply to Lover of Life. I saw you gave him
a site to look up...maybe, just maybe you can guide me to another
site....my partner has adenosarcoma of the ovary. I only found a
site which was a physicians study stating that only 40 woman in
the world had this dx and only twenty were ovarian (the others
were uterine). But I can't seem to find anything else. If you
know of more medical sites, I'd so appreciate it.
Hello, information on adenosarcoma is very difficult to find, I was glad to find this message board. I am one of the few who have this diagnosis--
I suffered from endometriosis for years, had a total hysterectomy but still the stuff grew back. In 2002 I thought I had more endo, but this time pathology said it was adenosarcoma. I've been on Megace for over 5 years, but a tumor has grown -- am now on Aromasin (breast cancer drug), as there isn't anything else to do except more surgery.
Best of luck, Epiphany