HiHarriet,
Dr. Rivkin is waiting for the results of my gentic testing and then he is going to call MY knuckleheaded oncologist and tell him what the plan is..we had discussed taxol each week, also getting some IP chemo which is what I wanted in the first place which my Doc also would not do...I also got a P.E.T. scan in seattle ( my doc did CAT scan) Dr. Rivkin says a PET scan should be done, so we did it. When he calls me this thursday Ill post what his advice is, all I know is Im not going to sit home and wait, Im going to do whatever I can and then if It dowsnt work out and I croak well at least I know I did what I could.