Norma,
I can't thank you enough for writing! It has been as though I have been in a black hole all by myself with this diagnosis. It seems nobody knows much about it and I have found no one with the disease on the internet. You are the first! THANK YOU* THANK YOU* THANK YOU!!!!! It brings tears to my eyes. I truly believe that God will heal me...whether he uses medical science or a miracle. It is just so hard for the doctor's to believe that sometimes. I don't like my doctor in Virginia Beach because he seems negative to me. I am not far from Duke as I live in VA Beach, VA. I am going to Sloane Kettering on Monday and trying to get in to WD Anderson in Houston. I was diagnosed about 6 weeks ago and I feel I got to get started on some treatment and WDA doesn't have an appointment with the only doc that seems to have any real knowledge and experience with this for another month. Also, my local doc doesn't seem to think radiation is valid. Apparently, it worked for you. Can you give me the names of your doctors that you have had a good experience with? My email is my user name at aol. Please write! Love and blesssings, Chris