Hello all,
I have been on this site many times reading questions and replies regarding renal cell carcinoma (kidney cancer). It has been a big help and I thank you. I am still reaching out to find as much information as I can, in hopes to educate myself as much as possible. Maybe you all can help.
My husband was first diagnosed with RCC in April 2003. He had several tumors from his right kidney to his left kidney. It was also in his adrenal glands. He had his left kidney and both adrenal glands removed in June of 2003, along with the tumor on his right kidney. The doctors said they got it all and they were 99% sure of it. They did a CT scan 6 months later and all was still clear. That was the last scan they did until April of this year. We found that not only had the cancer returned, but it had metastiszed. He has several tumors in the cavity of where his left kidney once was, several around the right kidney, small tumors in both lungs and had spread to several nodes. He was told there is no cure but with SUTENT, it may slow, or even stop, further growth. He is ending his second phase of sutent (50mg) and having a terrible time with eating because of his mouth hurting, and also diffiulty swallowing. I'm sorry I got long winded here but I was wondering if there is anyone out there with similar diagnosis? Also, is there anything that helps the tender mouth?
I appreciate anything that will help make him compfortable regarding the sutent. I would also like to hear from those with similiar diagnosis to.
Thanks,
Darla