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Essential Thrombocythemia And Hydrea

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Subject: RE: Essential Thrombocythemia and Hydrea
Date: 04/22/2008

Hi,

I was diagnosed with primary thrombocythemia in 2000, at the age of 41.  I was very sick and my count was never even up to a million.  I start to feel very bad any time they even go over 600m.  I have been on hydroxyurea twice.  Both times it was effective in bringing down my counts, but the side effects were horrible.  It IS chemotherapy. I didn't lose all my hair, but it became very thin and dull.  I had bad ulcers in my mouth and nose that were painful.  I was SO tired all the time.  Both times after about 4 months I told the docs I had to get off it. For the past 4 years I've been on anegrelide only.  I've had good results with it and feel much more "normal" physically.  I have had to keep increasing dosages though because it seems like after a while, the body adjusts to it and needs more to work properly.  I think you are right about stress affecting your counts.  It definitely affects mine.  I am frustrated that there are no other good therapies out there for us!

Messages History for "Essential Thrombocythemia And Hydrea"

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  2. RE: Essential Thrombocythemia and Hydrea
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  4. RE: Essential Thrombocythemia and Hydrea
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