Hi Everyone!
I am new to this website. My brother is 39 years old. He was diagnosed with cholangiocarcinoma in Oct. 2005. We have been searching for others who are dealing with this too.
We have been doing a lot of research as I'm sure many of you have too. We would love to get in contact with any of you who would like too. The more we share information the better it will be for all of us. Doctors seem to treat this differently. It's good for us to know what treatment others are receiving. Our family is working on setting up a website just for cholangiocarcinoma. It's in the beginning phases, but we are trying to put all the information that we are gathering there. We have also been in contact with other families who are dealing with this. Let me know if you would like more information. We would love to talk to you. Good luck in this battle.
Kelley