On 3/18/2005 Leonidas wrote:
On 11 January my wife of 32years was diagnosed with angiosarcoma. Tumor in HEART?????? Lungs, lymphs, very agressive they told us it occurs 1 per ten million so rare. We live in Greece at the present she is doing chemo - plus gleevec.
Hello, and god bless. My husband, a healthy, robust man of 50, was diagnosed w/angiosarcoma of the heart in early april of this year. Metro health center and the cleveland clinic, where he is now being treated, had never seen it before. Heard of it, never seen it. He is on a treatment called "abraxane', that is used mostly for breast cancer patients. He was very advanced by the time he was diagnosed. We are doing mostly all organic foods and veggies, very little red meat (buffalo, mostly) and clean, distilled water. Lots of green teas, "pom" juice, and any antioxident suppliment we can find. I think, from the response of his doctor at the clinic, he is a bit surprised at his condition. He is still very gravely ill, but he is no where near the state of despair he was in a month, or even 2 weeks ago. He has lost 45 pounds, but was a very healthy large muscled man before this. We are trying to keep his weight up so he has the energy to keep going. That has been difficult. He has a large, very hard area by his liver. Not sure if it is his liver. No one has addressed this yet. Need to find out. My friend does reflexology and told me to aggressively massage his feet, especially right one, by the toes and ball of the foot. He really likes this and said he immediately felt sensation go up his right leg and into the liver/kidney area. He has gone back to the gym to do mostly light leg workouts and very light upper body, arms mostly. His heart tumor is the most bizzarre thing anyone at the clinic has seen. Part of the tumor hangs down between the two halves of the heart and every time his heart beats, part of the tumor breaks free and goes into his lungs. Very small parts, but anything is bad. He had two pulmonary emboli in the beginning of this and has survived it all. He was on his death bed twice that i know of in the beginning and has been home, living his life the best he can for over a month now. Keep going. As the caregiver and wife, this is so devastating mentally and physically. But, we have to develope tunnel vision. I see nothing but a means to an end of this monster. What i have come to realize, in the matter of miracles, is the fact that we are even here on this earth every day is the biggest one of all. Best of luck ,love and peace to you. .... Joyce