Morning ladies,
Saw my new oncologist yesterday, glad I went, he's cool. I found out that I'm Braca2 positive and he is sending me to a genetist to figure out my sister's and children's risk (I guess). I'm taking tamoxifen now and getting my port put back in on tuesday. Sharon Schaeffer is my surgeon and I asked her to put it on the left side this time so when my husband Gary hugs me (which he does many times a day) it doesnt press on it (I'm a right sided hugger!)..so even the small things are important to advocate for yourself. I'm going to start taxol, once a week for 12 weeks pretty soon. Im going to see this crazy, but amazing, lady surgeon who lives in Talketna (land of misfits and stoners in the total woods of alaska) who will, if I dont have too much scar tissue in my guts, put an intraperitoneal port in and Ill get chemo that way too. I read alot about IP chemo and yes the side affects were worse, many ladies quit before completing all their treatments, but even those who quit benefitted from longer times to reoccurance. I was diagnosed and gutted last Sept. 1st, I have been tumor free since then, but Im not the kind of person that can "just wait for it to come back" as my first oncologist (who I recently kicked in the ditch) told me to do...madness...When I told him the doc in Seattle reccomended I do taxol he said "your hair will fall out again" Holy shit, has he any clue...who CARES about hair, Im talking life here!!! I could of just bludgened him with a rock!
I quit taking my black cohosh, for hot flashes, I dont have but one or so every couple of days anyway and their not sure wether they have some estrogen affect anyway. I DO continue to drink my eissac tea tho, the granola's say it supports your immune system through the combination of 8 herbs, my husband was on me like a dog to drink it the first go round and tho Im not into naturals per say, I think the stuff really did have some affect. I had absolutely no side affects or problems with the taxol/cisplatin..not one nauseous or uncomfortable moment, I think it MIGHT of been the eissac...
I decided to work this time instead of staying home, Im just going to have to do really good hand washing working with all those little snot noses at school. Theyre like walking germ buckets!! I get 6 yr. old illnesses in a 50 yr. old body..egad...
When my hair started falling out in handfulls I just went to the beauty shop and have them shave my head, I teared up alittle but the handfulls of hair falling out bit by bit was just too crazy. I have 4 different wigs but those damn things are hot and the hair keeps falling in my face, I noticed Britney Spears is wearing a scarf pulled around the front, I may try that this time. I agree the bald thing is just ONE more reminder of what is going on, I know my husband said it hurts him to see it and also when I went bald in public (which I did alot) it hurt him for other people to see me and now I was sick. Ya, lots and lots of feelings to work through.
Bought these tickets to visit my brother in Australia at Christmas from a guy off Craig's list online...all seemed well, well it turned out the total scam. I lost 2500 bucks for a lesson well learned...sort of knew .."if it sounds too good to be true, it probablly is"..live and learn. Tried to file a police, state trooper, FBI report..no one would even take my report.."We have bigger fish to fry" Not done with them yet...they have NO idea how obstinate I can be....I hope you both have a great day today, I have you both in my morning prayers...like I said Im new to this praying thing, geez once you start thinking of others instead of yourself that ole prayer list could get mightly weighty I imagine..oh well, energy well spent. Be happy, Colleen