Average Rating:Rating
Rate this Discussion: rate!

Gvhd

Expand all Messages
Caregiver
Caregiver
Howards Wife
Recommend this Message
Subject: GVHD
Date: 09/02/2007
My husband had an allogeneic mini-transplant in 11/05.  It was a 10 point, female, unrelated match.  He ended up the first month with GVHD of the skin and gastro.  After putting him on prednisone, he faired well.  His gut GVHD healed and his skin finally got better in about 6 months.  Just before his 1 year check up he got it back again and in December it flared with a vengence.  With all the high doses of prednisone he has gotten Stage 3 kidney disease and asvascular neucrosis in his hips.  He finally got off the prednisone this past July after a long taper and now his gastro GVHD has returned and his skin GVHD has flared.  They want to put him on prednisone again or give him a new shot that has had very little success for GVHD and has many side effects (severe infections, cancer).  He has been hospitalized since November for many pneumonias and is susceptible to infections.  Does anyone have any ideas?  We are desperate.  He has been on every type of immunosuppressant, has done total body irradiaiton, and ECP (photopheresis) treatments.  Help, we are desperate and his depression is getting worse.  It would seem someone out there has been through this and has come through.  Please help.

Messages History for "Gvhd"

  1. GVHD
  2. RE: GVHD
  3. RE: GVHD
  4. RE: GVHD
  5. RE: GVHD
Expand all Messages
close




Sending...
Required Fields All fields are required.
close
User is No longer Ignored
Show messages from this user
close
Report Abuse
Anonymous Note to Administrator:

Reporting
Latest Messages Show More
Sutent Posted by trim36 on 01/07 10:51:20 PM
RE: IS THIS A PROBLEM? Posted by trim36 on 01/07 10:48:51 PM
RE: LIPOSARCOMA TREATMENT Posted by Lovingwife on 01/07 10:47:41 PM
RE: LIPOSARCOMA TREATMENT Posted by Lovingwife on 01/07 10:43:05 PM
RE: LIPOSARCOMA TREATMENT Posted by Lovingwife on 01/07 10:38:46 PM
RE: If new diagnose pleas Posted by JustME45 on 01/07 10:35:35 PM
RE: Sister Sarcoma Posted by Lovingwife on 01/07 10:33:21 PM
NUMB FEET FINGER TIPS Posted by iphoto on 01/07 10:32:47 PM
RE: End is near Posted by JustME45 on 01/07 10:25:02 PM
RE: feed tubes Posted by mtkjohn1 on 01/07 10:16:50 PM
RE: Radiation treatments Posted by mtkjohn1 on 01/07 10:09:27 PM
CNCAHealth