On 9/19/2007
luckyme wrote:
I just came back from my appt at M. D. Anderson's Cancer Clinic in Houston. They are going to do lazer surgery to get rid of all the scar tissue from my prior surgeries, then have me come back every three to six months for testing. The VIN was not invasive, not in my blood stream, but level III. Is this what you had. You had a radical vulvectomy, I had feared that would be what they would recommend. Did you ever have lazor surgery?
Thank you, so glad you are finally well. I am fearful of the lazor, but will do whatever I have to do to get well.
S
Hello,
I am new here. Been reading your questions/answers since June. It has really helped to know I am not alone. It is still hard to explain to people. I have no HPV Virus and pap smears are normal. I had a partial skinning vulvectomy with a skin graft on July 2nd. The surgery was not fun. The recovery has been a long physical and emotional journey. A lot of hurry up and wait. The results were that it was Stages 2 & 3. They got all of that but the margins weren't clear. I am now waiting until November to do the Vinegar test (?) and more biopsys. He said he wanted to see if my immune system would kill off the cancer cells that were left. I guess that is the hardest part. Waiting to heal but yet in the back of my mind the what if's start. Now I am still pretty sore and just as I am getting used to all of this he will cut on me again. I know from the first go around with the biopsy they aren't fun either. But you know the one thing I have learned with all of this is that not matter how bad I think I have it someone else has it a lot worse. If you keep that in mind that seems to help. Thanks for listening.