On 9/17/2007
locomare wrote:
HI,
6/06 I was diagnosed was a 4 cm fiborid.
8/29/07 I went to surgery for a partial hysterectomy due to the enlarged fibroid. Dr. found an 12cm sarcoma within a 18x27cm fibroid. Dr. had an OBGYBN/Oncologist join the surgery and they did a total abdominal and took some lymph nodes as well, although they were healthy.
Stage 1
Grade 3
Tumor was negative for estrogen receptors
Positive for invasion of myometrial veins
Mitoses 9-50/10
CT Scan was performed and no other tumors were found.
My oncologist is recommending immediate abdominal radiation treatment and chemo consisting of Doxorubicin(Adriamycin)/Ifosfomide. Has anyone received these?
Everything I have read says chemo treatments don't work as a preventative measure only if it has already spread and will just damage me prematurely. Where would you go for a 2nd opinion? I am in Oregon.
ANY ADVICE WOULD BE GREATLY APPRECIATED.
Thanks,
KC
I know I am a little late in responding to your message, and you have probably already made your decision, but I thought I would still drop you a line and tell you a little bit about me.
I was diagnosed with ULMS in 1993, and had adjuvant chemo of Doxorubicin(Adriamycin)/Ifosfomide like you mentioned above. I told my doctor to "give me as much as you can, and I will deal with it." Well, he did. I had the maximum dose of both of these. It was hard, but I did not have any recurrence for almost 8 years. He told me at the start if I made it to 1 1/2 - 2 years my chances would go up a lot. I am now in the 15th year of recovery/survival.
I never gave up and have been known to disagree with a doctor or two.... I believe in being very proactive in my own healthcare, and working closely with my doctors'.
I also thoroughly believe in surgery vs leaving tumors in and just watching them. I have had a lot of tumors, and a lot of surgeries. I believe in "ah, a tumor - take it out!!" I am going to try and not "talk" too much here, so will just leave it at that.
This is very rare cancer, but I am here to encourage you to fight, listen to yourself, do everything you can to survive. I have. It is worth it.
If you have any questions, please drop me a private note and I will be happy to respond. I hope you are doing okay.
Take care,
B