I'm very interested in your treatment decisions. In 2/07 I had surgery for, supposedly, acute sinusitis in my right maxillary sinus. The biopsy came back positive for malignant melanoma. Another surgery took wider margins and tested negative for further cancer. PET/CT showed no other cancer activity in my body at that time. Six weeks of radiation ending in early July was supposed to kill off any remaining cancer cells.
Fast forward to Sept. 28. A follow-up PET scan now indicates probable metastasis to the bones in my right shoulder and left hip. I see a chemotherapy oncologist at the Univ. of Kansas Med Center this Tuesday to review the scans and determine a plan of action. Regardless of what he says I'm looking to get a second opinion. Who is doing the cutting edge research in this field? I've looked at the big names (MD Anderson, Sloan-Kettering, Johns Hopkins, Mayo). They're all running clinical trials, but at this point I just want another expert to confirm (or refute) whatever I'm told on Tuesday.
I've been reading quite a bit and am not encouraged by what I see, especially for metastasis in the bones. I'm definitely interested in knowing what has/has not worked for others.
Thanks,
John