Hi Donna,
I was just wondering how your surgery went? I have also been diagnosed with VIN 2-3. I am very scared. I have never had anything seriously wrong before. Just yeast infections, UTI's. Nobody I know has ever even heard of this, I am just learning about it myself. Anything that sounds remotely like cancer is just plain frightening...even if it's pre-cancer.
I have not yet seen the OB/Oncologist yet, but my gyno believed that the multiple lesions would be lasored off. I have also read that interferon is used along with surgery. Is this true? This is a pretty wicked drug that is used in treatment for HCV and has some heavy side effects.
Another question: What about sex? I am 39 and very active in this area and am missing this part of my life. When is sex okay? And... if this is related to HPV, does my SO need to get tested and treated? I know these are questions I should have asked my gyno, but failed to do so.
The reason I ask about HPV is, all of my previous tests indicated neg on HPV, but my biopsy indicated HPV DNA detected. My confusion starts about 8 mos. ago when my now ex-husband told me he had relations with possible IV drug users while we were still together. I asked my gyno to test me for everything at that time. All tests came back negative. Nothing detected. April 4, 2008 I was diagnosed with 2 to 3 stage VIN.
I am relieved to know that I am not alone.
Laura