My husband is in the last stages of the disease. Torisel is the last
resort. He got his first infusion yesterday. He is very very ill and
I am very very upset. The doctors told us that if this drug does not
work then he will have to have hospice. Right now he is getting blood
transfusions twice a month and is very very cold and listless. He
often gets delirious and talks to people in the room. There are times when he is incontinent due to the tumors in his spine. I am afraid he
is approaching death and don't know what to expect and it frightens me
very much. He understands what the doctors are telling him but he has a tremendous will to live and still wants to fight but they are telling us there are no more drugs. He has had IL2, Sutent, Interferon and Avastin and now Torisel. He has had sepsis and has a port line. His cancer started as only left kidney involvment. They took it out in 2000 and he was told he was cancer free. They didn't tell us that he had to have CT scans yearly. So in 2005 he had some problems and after scanning they found the cancer had spread to his lungs and adrenal glands. Now, 2 years later it is in his throat, his bone, his liver. He is in extreme pain and the pain meds make him so weak as well as his low blood counts that he falls easily. He is 6' 8" tall and is my "big hunk." But I am watching him deteriorate and it is killing me inside. Can anyone tell me what to expect in the end with kidney cancer? The unknown frightens us.