While I have found htis board to be very helpful as I help my husband fight this disease, another board has amazing infomration, archives, and on board knowledgeable people. I am enclosing the address and urge you to go there for more insight. I do not know where I would be without the info I get there-my husband's doctor calls me the surgeon general but Ihe always seems surprised and glad that I am familiar wiht most of the drugs and treatments that we discuss. the address is
KIDNEY-ONC@LISTSERV.ACOR.ORG