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Newly Diagnosed

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Subject: RE: Newly diagnosed
Date: 11/28/2007
I am not sure where you live but I would recommend you do alot of research.  My husband has carcinoid cancer - primary in the small intestines and spread to the liver before he was diagnosed.  We were told locally that he was not a candidate for surgery and they were immediately recommeding high dose radiation treatment.  We chose to research before jumping into a treatment.  We live in the Houston area and found a group of doctors in Kenner Louisianna.  He had surgery in August - removed the primary tumor and the largest tumor in the liver.  He is scheduled for surgery again in March and the doctors are telling us he will be diease free after this next surgery... Just be aware that many doctors take a wait and see approach - your son is very young - I recommend be as aggressive as you can.  Has he been started on Sandostatin (Octreotide) injections yet?  This is usually one of the first treatments started. The doctors we use are:  Dr. Eugene Woltering (Oncologist) and Dr. Philip Boudreaux (surgeon) .  You can find their information on the carcinoid awareness website - www.carcinoid.org.   There are a couple other well known carcinoid doctors on this website.  Good luck - let me know if I can be of any other help!!  My prayers are with you!!

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