Hi,
June of 2003 my husband was diagnosed with mm. Our onc. said it was more than twice as bad as any case he had seen or heard of. My husband was given two to three days to live. Our two year visit the Dr. said "All I do is put numbers in a computer and it spits out a survival rate, But that computer doesn't know you. I have no crystal ball. you may just outlive the rest of us. I would definately be thinking 5 to 20 years."
My husband loss the use of his kidneys and is doing peritoneal dyalisis. He loves this and will never go back to clinical dialysis. We have a nephrologist who has been studying mm and kidney failure for 25 years and believes pd dialysis is responsible for my husbands health. He has not rached remission but we are optimistic.Willy also takes dexamethazone.
For the first year and a half my husband was skin and bones and we spent a good deal of our life at the emergency room and ICU. Right now he is working on remodeling our home and is also putting his motorcycle together. He says he no longer thinks about having cancer.I have read that in the next 5 to 10 years they will treat mm like diabetes. (still terminal but maintained.)Also they are experimenting with a dialisis machine that you wear on your belt and it works 24 hours a day.
Be positive you never know. And hope that technoledgy comes up with more answers. I which all the best. It's a hard, hard road