My Mom has Stage IV NSCLC and started on Tarceva - which has worked well to date. She was rejected by Genetech's Access to Care Foundation for reimbursement - but we found another program - The Medicare Replacement Drug Demonstration. My mom has been accepted for Level 1 Benefits from this program. The following web-site provides information regarding the program and coverage.
It is a limited enrollment program and provides significant coverage:
http://www.cms.hhs.gov/researchers/demos/drugcoveragedemo.as
Hope this helps and best wishes for success in your battle.